Show notes
The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 24 Hour Crisis Line: 941-312-0400Pulse HeaderEnjoy Summer with this List of Fun Activities! - Prader-Willi Syndrome Association | USANavigating Summer Celebrations - Prader-Willi Syndrome Association | USAStaying Safe in the Heat - Prader-Willi Syndrome Association | USASpotlight on PWSShare Your Story - Prader-Willi Syndrome Association | USAResource SpotlightTREND ConnectEvents | FundraisersDancing Through the Decades - CampaignDonate to Hummus & Watermelon: United We Brunch for PWSPWSA EventsPodcastEp95 Garrick Siblings: Importance of Community and Listening | PWS UnitedAdvocacyLocal Moms Show Support for Prader-Willi Syndrome Awareness DayFinding the FunnyPrader Silly: A Night of Rare Laughs - CampaignD.C. Fly-In 2026 - Prader-Willi Syndrome Association | USAFamily SupportAwareness Month Success: Thank you, PWS Community! - Prader-Willi Syndrome Association | USAMedical Stories - Prader-Willi Syndrome (PWS): Ayoni's StoryAsk Nurse Lynn: NG Tube or G Tube - Prader-Willi Syndrome Association | USASubmit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USAResearchHome - Global Prader-Willi Syndrome RegistryThe Missing Piece in the Prader-Willi Puzzle: Optimizing Transitions of Care and Patient Quality of LifePRETEND Program for Preschoolers Eligibility FormPWS Clinician Information Collection Form - Prader-Willi Syndrome Association | USAAnnouncements2027 PWSA | USA United in Hope National Convention - Prader-Willi Syndrome Association | USA Intro Music: https://www.bensound.com/ License certificate #2242442 Music: www.purple-planet.comDisclaimer for show notes: This episode is sponsored by Soleno Therapeutics, the makers of VYKAT XR. While PWSA | USA does not endorse any specific treatment, we recognize the importance of sharing information about options available to the PWS community. Decisions about medical care should always be made in consultation with a qualified healthcare provider. Please visit www.vykatxr.com for information on use and potential side effects.
