Show notes
The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 24 Hour Crisis Line: 941-312-0400 Pulse Header The Importance of PWS Awareness Day - PWSA | USA BlogResource Spotlight Share Your Spotlight on PWSPWS Awareness Month Hummus & Watermelon United We Brunch Event - May 31, 2026 | Omaha, NEPWS Awareness Month HubEvents | Fundraisers View All Upcoming PWS Community EventsSoleno Therapeutics PWS Community Day in New JerseyUnited in Action - PWS Awareness Month CampaignPodcast Ep92 Ask Nurse Lynn: Behavior and Psychiatric IssuesAdvocacy A full recap of PWSA | USA's 2026 D.C. Fly-In is coming soon!Colors of Hope Webinar - Advocating as a Person of Color in the Rare Disease Space (May 28 | 8 PM ET)RSVP to: [email protected]Advocacy in New Hampshire: RDAC Appointment of Melanie Zalman, Awareness Day Proclamation - PWSA | USA BlogCalling Kansas PWS Families - PWSA | USA BlogFamily Support PWS Roadshow Connects Families in Bellingham for Life-Changing Outreach Event - PWSA | USA BlogMore PWS Roadshow EventsAsk Nurse Lynn: Recurring Urinary Tract Infections (UTI) - PWSA | USA BlogSubmit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA Research Aardvark Therapeutics Plans to Unblind HERO and OLE Data to Inform Path Forward Following FDA Clinical HoldFree CME! The Missing Piece in the Prader-Willi Puzzle: Optimizing Transitions of Care and Patient Quality of LifePRETEND Play Intervention Study for Ages 3-7: Eligibility FormFor questions, email: neurodevelopmentresearchlab@gmail.comPWS Clinician Information Collection FormPWSA | USA Announcements2027 United in Hope National PWS Convention Scholarship Applications (Due by June 1, 2026) Intro Music: https://www.bensound.com/ License certificate #2242442 Music: www.purple-planet.com Disclaimer for show notes: This episode is sponsored by Soleno Therapeutics, the makers of VYKAT XR. While PWSA | USA does not endorse any specific treatment, we recognize the importance of sharing information about options available to the PWS community. Decisions about medical care should always be made in consultation with a qualified healthcare provider. Please visit www.vykatxr.com for information on use and potential side effects.



