PWS United
PWS United
PWSA | USA
Ep93 Pulse 147: PWS Awareness Day, D.C. Fly-In Recap, Voices on VYKAT 5
48 minutes Posted May 19, 2026 at 10:00 am.
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The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 
24 Hour Crisis Line: 941-312-0400
 
Pulse Header 
The Importance of PWS Awareness Day - PWSA | USA Blog
Resource Spotlight 
Share Your Spotlight on PWS
PWS Awareness Month 
Hummus & Watermelon United We Brunch Event - May 31, 2026 | Omaha, NE
PWS Awareness Month Hub
Events | Fundraisers 
View All Upcoming PWS Community Events
Soleno Therapeutics PWS Community Day in New Jersey
United in Action - PWS Awareness Month Campaign
Podcast 
Ep92 Ask Nurse Lynn: Behavior and Psychiatric Issues
Advocacy 
A full recap of PWSA | USA's 2026 D.C. Fly-In is coming soon!
Colors of Hope Webinar - Advocating as a Person of Color in the Rare Disease Space (May 28 | 8 PM ET)
RSVP to: [email protected]
Advocacy in New Hampshire: RDAC Appointment of Melanie Zalman, Awareness Day Proclamation - PWSA | USA Blog
Calling Kansas PWS Families - PWSA | USA Blog
Family Support 
PWS Roadshow Connects Families in Bellingham for Life-Changing Outreach Event - PWSA | USA Blog
More PWS Roadshow Events
Ask Nurse Lynn: Recurring Urinary Tract Infections (UTI) - PWSA | USA Blog
Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA  
Research 
Aardvark Therapeutics Plans to Unblind HERO and OLE Data to Inform Path Forward Following FDA Clinical Hold
Free CME! The Missing Piece in the Prader-Willi Puzzle: Optimizing Transitions of Care and Patient Quality of Life
PRETEND Play Intervention Study for Ages 3-7: Eligibility Form
For questions, email: neurodevelopmen​tresearchlab@gm​ail.com
PWS Clinician Information Collection Form
PWSA | USA Announcements
2027 United in Hope National PWS Convention Scholarship Applications (Due by June 1, 2026)
 
Intro Music: https://www.bensound.com/  License certificate #2242442  
Music: www.purple-planet.com 
Disclaimer for show notes:  
This episode is sponsored by Soleno Therapeutics, the makers of VYKAT XR. While PWSA | USA does not endorse any specific treatment, we recognize the importance of sharing information about options available to the PWS community. Decisions about medical care should always be made in consultation with a qualified healthcare provider. Please visit www.vykatxr.com for information on use and potential side effects.