PWS United
PWS United
PWSA | USA
Ep89 Pulse 145: PWS Awareness Month, DC Fly-In, Voices on VYKAT 4, Autism Blog
49 minutes Posted Apr 21, 2026 at 10:00 am.
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The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 
24 Hour Crisis Line: 941-312-0400
 
Pulse Header 
Celebrating Occupational Therapy Month: How OT Builds Confidence, Comfort, and Skills for Life - Prader-Willi Syndrome Association | USA 
Occupational Therapy, Parent Perspective - Prader-Willi Syndrome Association | USA 
Spotlight on PWS 
Diving in to Volunteering - Prader-Willi Syndrome Association | USA 
Share Your Story - Prader-Willi Syndrome Association | USA 
Resource Spotlight 
Treatment Approaches for Prader-Willi Syndrome 
PWS Awareness Month 
PWS Awareness Month - Prader-Willi Syndrome Association | USA 
United in Action - Campaign 
Events | Fundraisers 
Magnolias & Mimosas - Campaign 
PWS Community Day Registration (Miami) Survey 
Miami_PWS_Community_Day_Digital_Invite.pdf 
PWSA Events 
Podcast 
Ep88: What is a Rare Pharmacy? How PWS Families Receive Care Through PANTHERx | PWS United 
Advocacy 
Monday Office Hours for DC Fly-In Attendees: Join from Zoom Workplace app - Zoom 
Friday Office Hours for DC Fly-In Attendees: Join from Zoom Workplace app - Zoom 
Family Support 
Living Between Diagnoses: Hunter’s Journey with Prader-Willi Syndrome and Autism - Prader-Willi Syndrome Association | USA 
Ask Nurse Lynn: Cataplexy Evaluation - Prader-Willi Syndrome Association | USA
Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA  
Research 
Soleno Webinar: One Year of VYKAT XR - Celebrating milestones in treating hyperphagia in PWS 
TEMPO PWS Clinical Study For Prader-Willi Syndrome - Enroll Today 
PWS Clinician Information Collection Form - Prader-Willi Syndrome Association | USA 
 
Intro Music: https://www.bensound.com/  License certificate #2242442  
Music: www.purple-planet.com 
Disclaimer for show notes:  
This episode is sponsored by Soleno Therapeutics, the makers of VYKAT XR. While PWSA | USA does not endorse any specific treatment, we recognize the importance of sharing information about options available to the PWS community. Decisions about medical care should always be made in consultation with a qualified healthcare provider. Please visit www.vykatxr.com for information on use and potential side effects.