Show notes
The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 24 Hour Crisis Line: 941-312-0400Pulse Header2027 PWSA | USA United in Hope National Convention - Prader-Willi Syndrome Association | USASpotlight on PWSShare Your Story - Prader-Willi Syndrome Association | USAResource SpotlightUnderstanding Prader Willi Syndrome & AutismEvents | FundraisersPWS Roadshow: Events | PWSA-OR-WA.ORGPWS Community Day Registration (Miami) SurveyMiami_PWS_Community_Day_Digital_Invite.pdfPWSA EventsPodcastEp86: Homeschooling, The Ins and Outs of Educational Choice | PWS UnitedAdvocacyHUD Changes Eviction Notice Rules for HUD-Assisted Housing - Prader-Willi Syndrome Association | USAMonday Office Hours for DC Fly-In Attendees: Join from Zoom Workplace app - ZoomFriday Office Hours for DC Fly-In Attendees: Join from Zoom Workplace app - ZoomFamily SupportGrowing up with PWS: A Sibling's Story - Prader-Willi Syndrome Association | USAAsk Nurse Lynn: Behavioral Outbursts and Psychiatric Support - Prader-Willi Syndrome Association | USASubmit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USAResearchA Message from Soleno Therapeutics: Reflecting on One Year of VYKAT XR - Prader-Willi Syndrome Association | USASoleno Webinar: One Year of VYKAT XR - Celebrating milestones in treating hyperphagia in PWSTirzepatide Study: Contact the Endocrine Research Team at [email protected] or 206-987-2540, or visit Study Details | NCT06901245 | Tirzepatide in PWS, HO and GNSO | ClinicalTrials.govPWS Clinician Information Collection Form - Prader-Willi Syndrome Association | USA Intro Music: https://www.bensound.com/ License certificate #2242442 Disclaimer for show notes: This episode is sponsored by Soleno Therapeutics, the makers of VYKAT XR. While PWSA | USA does not endorse any specific treatment, we recognize the importance of sharing information about options available to the PWS community. Decisions about medical care should always be made in consultation with a qualified healthcare provider. Please visit www.vykatxr.com for information on use and potential side effects.
