Show notes
The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 24 Hour Crisis Line: 941-312-0400Pulse HeaderSpotlight on PWSPWSA | USA Rare Aware Art Share: Theme #1 GalleryPWS Rare Aware Art Share - Prader-Willi Syndrome Association | USAShare Your Story - Prader-Willi Syndrome Association | USAResource SpotlightSwallowing in Prader-Willi SyndromeEvents | FundraisersSolidarity & Spice - CampaignYou're Invited to Solidarity & Spice: A Message from Dini RaoPWANY 2026 ConferencePWSA Fundraising Pages - CampaignPodcastEp84: Welcoming PWSA | USA's Equity Committee | PWS UnitedPWSA | USA Media Submissions - Prader-Willi Syndrome Association | USAAdvocacyPrader-Willi Syndrome (PWS): A Rare Condition With Everyday ChallengesRare Diseases by Mediaplanet_USA - IssuuPrader-Willi Syndrome (PWS): A Rare Condition With Everyday Challenges - Future of Personal HealthFamily SupportFinding a Viable Treatment for Excessive Daytime Sleepiness Through the TEMPO Trial - Prader-Willi Syndrome Association | USAAsk Nurse Lynn: Dissociation and PWS Mental Health - Prader-Willi Syndrome Association | USASubmit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USAResearchHome - Global Prader-Willi Syndrome RegistryThe FOCUS projectPWS Clinician Information Collection Form - Prader-Willi Syndrome Association | USAAnnouncementsPWSA | USA Board of Directors Member Spotlight: Tina Ihlenfeld - Prader-Willi Syndrome Association | USA Intro Music: https://www.bensound.com/ License certificate #2242442 Music: www.purple-planet.comDisclaimer for show notes: This episode is sponsored by Soleno Therapeutics, the makers of VYKAT XR. While PWSA | USA does not endorse any specific treatment, we recognize the importance of sharing information about options available to the PWS community. Decisions about medical care should always be made in consultation with a qualified healthcare provider. Please visit www.vykatxr.com for information on use and potential side effects.



