PWS United
PWS United
PWSA | USA
Ep85: Pulse 143 Hot Stove, Disordered Sleep, Voices on Vykat 3
39 minutes Posted Mar 24, 2026 at 10:00 am.
0:00
39:50
Download MP3
Show notes
The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 
24 Hour Crisis Line: 941-312-0400
Pulse Header
Spotlight on PWS
PWSA | USA Rare Aware Art Share: Theme #1 Gallery
PWS Rare Aware Art Share - Prader-Willi Syndrome Association | USA
Share Your Story - Prader-Willi Syndrome Association | USA
Resource Spotlight
Swallowing in Prader-Willi Syndrome
Events | Fundraisers
Solidarity & Spice - Campaign
You're Invited to Solidarity & Spice: A Message from Dini Rao
PWANY 2026 Conference
PWSA Fundraising Pages - Campaign
Podcast
Ep84: Welcoming PWSA | USA's Equity Committee | PWS United
PWSA | USA Media Submissions - Prader-Willi Syndrome Association | USA
Advocacy
Prader-Willi Syndrome (PWS): A Rare Condition With Everyday Challenges
Rare Diseases by Mediaplanet_USA - Issuu
Prader-Willi Syndrome (PWS): A Rare Condition With Everyday Challenges - Future of Personal Health
Family Support
Finding a Viable Treatment for Excessive Daytime Sleepiness Through the TEMPO Trial - Prader-Willi Syndrome Association | USA
Ask Nurse Lynn: Dissociation and PWS Mental Health - Prader-Willi Syndrome Association | USA
Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA
Research
Home - Global Prader-Willi Syndrome Registry
The FOCUS project
PWS Clinician Information Collection Form - Prader-Willi Syndrome Association | USA
Announcements
PWSA | USA Board of Directors Member Spotlight: Tina Ihlenfeld - Prader-Willi Syndrome Association | USA
 
Intro Music: https://www.bensound.com/  License certificate #2242442 
Music: www.purple-planet.com
Disclaimer for show notes: 
This episode is sponsored by Soleno Therapeutics, the makers of VYKAT XR. While PWSA | USA does not endorse any specific treatment, we recognize the importance of sharing information about options available to the PWS community. Decisions about medical care should always be made in consultation with a qualified healthcare provider. Please visit www.vykatxr.com for information on use and potential side effects.