The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 24 Hour Crisis Line: 941-312-0400 Pulse HeaderNutrition Discourse in the PWS Community - Prader-Willi Syndrome Association | USANutrition in the PWS Family - Prader-Willi Syndrome Association | USANUTRITIONAL-PHASES.pdfResources: Diet and Nutrition - Prader-Willi Syndrome Association | USASpotlight on PWSShare Your Story - Prader-Willi Syndrome Association | USAResource SpotlightSwallowing in Prader-Willi SyndromeShare Your Rare Story - Prader-Willi Syndrome Association | USAEvents | FundraisersPrader Silly: A Night of Rare Laughs - CampaignEvents from March 21, 2020 – September 12, 2020 – Prader-Willi Syndrome Association | USAPWSA Fundraising Pages - CampaignPodcastEp82: Kady Sweeney: See the Potential, Savor Typical Moments | PWS UnitedAdvocacyRare Disease Advocacy in the PWS Community - Prader-Willi Syndrome Association | USAReflections from Rare Disease Week on Capitol Hill 2026 - Prader-Willi Syndrome Association | USAPWS Rare Aware Art Share - Prader-Willi Syndrome Association | USAFamily SupportWe're Here: Then, Now, Always! Developmental Disabilities Awareness Month - Prader-Willi Syndrome Association | USAPlay-based Assessment for Preschoolers: If you have questions, please email [email protected] or call 216-368-0112. Visit the website at https://caslabs.case.edu/dimitropouloslab/. Fill out the eligibility form at PRETEND Program for Preschoolers Eligibility FormAsk Nurse Lynn: Nutrition Guidelines and a Group Home - Prader-Willi Syndrome Association | USASubmit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USAResearchAardvark Therapeutics Announces Voluntary Pause of Phase 3 HERO Trial in Prader-Willi Syndrome – Fri, 02/27/2026 - PWS Clinician Information Collection Form - Prader-Willi Syndrome Association | USAResponse to Anesthetic Survey: REDCapSocial cognition study: If you have questions, email [email protected] or call 216-368-0112. Submit interest at Assessing Play & Creativity Study - Interest FormTEMPO PWS Clinical Study For Prader-Willi Syndrome - Enroll Today Intro Music: https://www.bensound.com/  License certificate #2242442 Music: www.purple-planet.comDisclaimer for show notes: This episode is sponsored by Soleno Therapeutics, the makers of VYKAT XR. While PWSA | USA does not endorse any specific treatment, we recognize the importance of sharing information about options available to the PWS community. Decisions about medical care should always be made in consultation with a qualified healthcare provider. Please visit www.vykatxr.com for information on use and potential side effects.