PWS United
PWS United
PWSA | USA
Ep81 Pulse 141: Caregivers Day, Voices on Vykat, Board Member Spotlights
1 hour Posted Feb 24, 2026 at 11:00 am.
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Show notes
The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 
24 Hour Crisis Line: 941-312-0400
 
Pulse Header
National Caregivers Day: The Real Job Description - Prader-Willi Syndrome Association | USA
Spotlight on PWS
"Uncle Dan" Helping to Feed the Community - Prader-Willi Syndrome Association | USA
Share Your Story - Prader-Willi Syndrome Association | USA
Resource Spotlight
PWS - Rare Disease Day - Prader-Willi Syndrome Association | USA
Share Your Rare Story - Prader-Willi Syndrome Association | USA
Events | Fundraisers
PWS Community Day Registration (North Carolina) Survey
Donate to Mermaid Marathon
PWSA Fundraising Pages - Campaign
Podcast
Ep80: What's in Store for PWSA | USA in 2026? | PWS United
Advocacy
Underserved People in the PWS Community: Who Are They and How Can We Help? - Prader-Willi Syndrome Association | USA
Home | Colors Of Hope
Family Support
Why It Matters to Belong and It’s Important to Matter - Prader-Willi Syndrome Association | USA
PWS Rare Aware Art Share - Prader-Willi Syndrome Association | USA
Ask Nurse Lynn: Recovery and Weight Loss After Surgery - Prader-Willi Syndrome Association | USA
Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA
Research
HERO Trial Webinar: Webinar Registration - Zoom
TEMPO PWS Clinical Study For Prader-Willi Syndrome - Enroll Today
Announcements
PWSA | USA Board of Directors Member Spotlight: Jeffrey Covington - Prader-Willi Syndrome Association | USA
PWSA | USA Board of Directors Member Spotlight: Dini Rao - Prader-Willi Syndrome Association | USA
 
Intro Music: https://www.bensound.com/  License certificate #2242442 
Music: www.purple-planet.com
Disclaimer for show notes: 
This episode is sponsored by Soleno Therapeutics, the makers of VYKAT XR. While PWSA | USA does not endorse any specific treatment, we recognize the importance of sharing information about options available to the PWS community. Decisions about medical care should always be made in consultation with a qualified healthcare provider. Please visit www.vykatxr.com for information on use and potential side effects.