Show notes
The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 24 Hour Crisis Line: 941-312-0400 Pulse HeaderNational Caregivers Day: The Real Job Description - Prader-Willi Syndrome Association | USASpotlight on PWS"Uncle Dan" Helping to Feed the Community - Prader-Willi Syndrome Association | USAShare Your Story - Prader-Willi Syndrome Association | USAResource SpotlightPWS - Rare Disease Day - Prader-Willi Syndrome Association | USAShare Your Rare Story - Prader-Willi Syndrome Association | USAEvents | FundraisersPWS Community Day Registration (North Carolina) SurveyDonate to Mermaid MarathonPWSA Fundraising Pages - CampaignPodcastEp80: What's in Store for PWSA | USA in 2026? | PWS UnitedAdvocacyUnderserved People in the PWS Community: Who Are They and How Can We Help? - Prader-Willi Syndrome Association | USAHome | Colors Of HopeFamily SupportWhy It Matters to Belong and It’s Important to Matter - Prader-Willi Syndrome Association | USAPWS Rare Aware Art Share - Prader-Willi Syndrome Association | USAAsk Nurse Lynn: Recovery and Weight Loss After Surgery - Prader-Willi Syndrome Association | USASubmit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USAResearchHERO Trial Webinar: Webinar Registration - ZoomTEMPO PWS Clinical Study For Prader-Willi Syndrome - Enroll TodayAnnouncementsPWSA | USA Board of Directors Member Spotlight: Jeffrey Covington - Prader-Willi Syndrome Association | USAPWSA | USA Board of Directors Member Spotlight: Dini Rao - Prader-Willi Syndrome Association | USA Intro Music: https://www.bensound.com/ License certificate #2242442 Music: www.purple-planet.comDisclaimer for show notes: This episode is sponsored by Soleno Therapeutics, the makers of VYKAT XR. While PWSA | USA does not endorse any specific treatment, we recognize the importance of sharing information about options available to the PWS community. Decisions about medical care should always be made in consultation with a qualified healthcare provider. Please visit www.vykatxr.com for information on use and potential side effects.



