Show notes
The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 24 Hour Crisis Line: 941-312-0400 Pulse HeaderResidential Providers Conference - Prader-Willi Syndrome Association | USASpotlight on PWSShare Your Story - Prader-Willi Syndrome Association | USAResource SpotlightPWS Rare Disease Day-15 Ways to Raise AwarenessShare Your Rare Story - Prader-Willi Syndrome Association | USAEvents | FundraisersPlunge for PWS - CampaignEmail Anne at [email protected] to be challenged.Family Zoo Day - Miami | Prader-Willi Florida AssociationPWSA | USA EVENTS WebpagePWSA Fundraising Pages - CampaignPodcastEp78: Miriam Chernick: Educating the Community | PWS UnitedHome - Global Prader-Willi Syndrome RegistryAdvocacyCongress Passes Five-Year Reauthorization of the Rare Pediatric Disease PRV Program! - Prader-Willi Syndrome Association | USAOfficial Super Bowl 60 Game ProgramPWSA | USA and Soleno Therapeutics Take PWS Awareness to the Super Bowl - Prader-Willi Syndrome Association | USAPWA of PA Member QuestionnaireFamily SupportNasogastric and Gastric Feeding Tubes: What, Why, and When They Are Needed - Prader-Willi Syndrome Association | USAPWS Rare Aware Art Share - Prader-Willi Syndrome Association | USAAsk Nurse Lynn: Behavior and Medications for Adults - Prader-Willi Syndrome Association | USASubmit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USAResearchHome - Global Prader-Willi Syndrome RegistryAnnouncements/Resource SpotlightStephanie Elizabeth Pircher Obituary (2026) - Windsor, MO - Hadley Funeral Home - Windsor Intro Music: https://www.bensound.com/ License certificate #2242442 Disclaimer for show notes: This episode is sponsored by Soleno Therapeutics, the makers of VYKAT XR. While PWSA | USA does not endorse any specific treatment, we recognize the importance of sharing information about options available to the PWS community. Decisions about medical care should always be made in consultation with a qualified healthcare provider. Please visit www.vykatxr.com for information on use and potential side effects.
