Show notes
The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 24 Hour Crisis Line: 941-312-0400 Rare Aware Art ShareRare Aware Art Share Back for 2026: PWS Advocacy and Awareness - Prader-Willi Syndrome Association | USAPWS Rare Aware Art Share - Prader-Willi Syndrome Association | USASpotlight on PWSShare Your Story - Prader-Willi Syndrome Association | USAEvents | FundraisersClint Hurdle Hot Stove Dinner Hub - Prader-Willi Syndrome Association | USAPWSA | USA EVENTS WebpagePWSA Fundraising Pages - CampaignPodcastEp75: Global PWS Registry 2.0 | PWS UnitedHome - Global Prader-Willi Syndrome RegistryAdvocacyPWSA | USA and Soleno Therapeutics Take PWS Awareness to the Super Bowl - Prader-Willi Syndrome Association | USAD.C. Fly-In 2026 - Prader-Willi Syndrome Association | USARare Disease Week - EveryLife Foundation for Rare DiseasesRare Disease Week 2024 Colors of Hope: Webinar Registration - ZoomPWSA NJ Registry UpdateFamily SupportHow Individuals with PWS Can Use Social Media Safely - Prader-Willi Syndrome Association | USAAsk Nurse Lynn: Hemoglobin Levels - Prader-Willi Syndrome Association | USASubmit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USAResearchHarmony Biosciences Guides to Over $1 Billion in WAKIX® Revenue in 2026; Advancing Robust Late-Stage Pipeline With Potential for Long-term Value Creation | Harmony BiosciencesPrader-Willi Syndrome and VYKAT™ XR (diazoxide choline)Shedding Light on Sleep Disorders in Prader-Willi Syndrome | January 29, 2026TREND ConnectAnnouncements/Resource Spotlight[email protected] Intro Music: https://www.bensound.com/ License certificate #2242442 Music: www.purple-planet.comDisclaimer for show notes: This episode is sponsored by Soleno Therapeutics, the makers of VYKAT XR. While PWSA | USA does not endorse any specific treatment, we recognize the importance of sharing information about options available to the PWS community. Decisions about medical care should always be made in consultation with a qualified healthcare provider. Please visit www.vykatxr.com for information on use and potential side effects.
