PWS United
PWS United
PWSA | USA
Ep70 Pulse 136: In Memory of Fausta, Give Kids a Chance Act, HERO Study Expansion, PWS Relationships Study
28 minutes Posted Dec 9, 2025 at 11:00 am.
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The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 
24 Hour Crisis Line: 941-312-0400
In Loving Memory of Fausta Deterling, Co-Founder of PWSA | USA - Prader-Willi Syndrome Association | USA
Angel Drive
Angel Drive 2025 - Prader-Willi Syndrome Association | USA
Stacy’s Thank You Message
Hope in Action: Carol's Story
PWSA Memory
1997_Vol-XXII-N4-Sept-1997.pdf
Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA
Events | Fundraisers
Claus for a Cause Thank You Message
PWSA Fundraising Pages - Campaign
Spotlight on Hope
Spotlight on Hope: Sharon, Leora Saacks Share Loved One Andrea's Journey with PWS - Prader-Willi Syndrome Association | USA
Share Your Story - Prader-Willi Syndrome Association | USA
Podcast
Ep69: Joe Gill: Inclusion, Purpose, and the Little Things | PWS United
Advocacy
A Milestone for Hope: U.S. House Passes the Give Kids a Chance Act - Prader-Willi Syndrome Association | USA
Family Support
Reflections from PWSA | USA’s Visit to PANTHERx Rare Pharmacy - Prader-Willi Syndrome Association | USA
Adoption Spotlight for Santino, contact: [email protected] or 412-441-4484
Ask Nurse Lynn: Testosterone and Low LH - Prader-Willi Syndrome Association | USA
Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA
Research
HERO Study for Treatment of Hyperphagia in PWS
PWS-PARTICIPANTS-NEEDED.pdf Flyer for adult with PWS relationship study
Pre-screening Survey for adults with PWS for relationship study
New Research Study Seeks Caregiver Insights on Hyperphagia in PWS - Prader-Willi Syndrome Association | USA   
Eligibility Screening for Hyperphagia study: survey.alphadetail.com/wix/5/p867000759655.aspx?refby=medp
Screening Questionnaire for the Study Titled: The Effects of a Caregiver-Implemented Power Card Strategy on Social Play Skills in Children with Prader-Willi Syndrome | QuestionPro Survey
Prader-Willi Syndrome Clinical Scholarship Announcement - Prader-Willi Syndrome Association | USA
Announcements/Resource Spotlight
Holiday Gift Ideas: Sensory Edition - Prader-Willi Syndrome Association | USA
 
Intro Music: https://www.bensound.com/  License certificate #2242442