PWS United
PWS United
PWSA | USA
Ep68 Pulse 135: Holiday Preparation, Prader Silly Recap, 2026 D.C. Fly-In, PWS and Diabetes, Research Spotlight
1 hour Posted Nov 25, 2025 at 11:00 am.
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The latest in PWSA | USA events and PWS news in advocacy, family support, and research.
24-Hour Crisis Line: (941) 312-0400 - Available 24/7, including Holidays.
Preparing for the Holidays Blogs/Resources:
Celebrate Thanksgiving Safely
Tips and Techniques for a Safe Holiday Season
Cousins at Christmas: Opening the Conversation of Your Child’s Special Needs
A Letter to Friends and Family
PWSA Memory:
September 1997 edition of The Gathered View
Spotlight on Hope:
Share your submission!
2025 Angel Drive Campaign:
Click Here to Make an Impact
Hope in Action Video - Shaping the Future of PWS
Save the Date: Giving Tuesday is Tuesday, December 2, 2025 - DOUBLE your impact when you give to the Angel Drive on that date!
PWS Christmas Experience near PDX:Email [email protected] by December 3, 2025 to RSVP.
Prader Silly:
Event Photo Gallery (Photo credit: Taylor Brown | @word.doc_brown)
Claus for a Cause:
Register for Claus for a Cause
Bid on Claus for a Cause Silent Auction Items
Donate to Claus for a Cause
D.C. Fly-In - Applications for the 2026 D.C. Fly-In will open soon!For questions, email [email protected] sponsor this event, email [email protected].
Operation Holiday Cheer
Click Here to Submit an ApplicationDeadline to submit an application is Monday, December 1, 2025. Email [email protected] with any questions.
Prader-Willi Syndrome and Diabetes
Click Here to Read the Blog Article
¡Anuncio! Nuevo Grupo de Apoyo en Español
Únete Aquí
Ask Nurse Lynn
PWS and Aging Response Article
Submit Your Own Non-Emergency Question about PWS
TREND Community and PWS Connect on Discord
Click Here to Learn More
Join the conversation today! Interested? Email interested@tren​d.community and we’ll send you a private link to join PWS Connect on Discord!
Research Spotlight
Harmony Biosciences TEMPO PWS Clinical Trial
PWSA | USA Resource Spotlight
Central Adrenal Insufficiency Screening with Morning Plasma Cortisol and ACTH Levels in Prader-Willi syndrome
Intro Music: https://www.bensound.com/  License certificate #2242442