Show notes
The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 24 Hour Crisis Line: 941-312-0400Gala Live AuctionPWSA | USA's 50th Anniversary: Journey of Hope Gala AUCTION50th-Gala-How-to-Bid-on-the-Silent-Auction.pdfPWSA Memory1982_Vol-VIII-N5-Sept-Oct-1982.pdfShare your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USAEvents PWSA | USA's 50th Anniversary: Journey of Hope Gala - CampaignFundraisers2nd Annual Dance Silly for Prader-Willi - Prader-Willi Syndrome Association | USACocktails for a Cause- A Night for Prader-Willi Syndrome - CampaignAnswers for Audrey - CampaignPrader-Silly: A Night of Rare Laughs - Prader-Willi Syndrome Association | USAPWSA Fundraising Pages - CampaignSpotlight on HopeRising Star in the PWS Community and Beyond - Prader-Willi Syndrome Association | USAShare Your Story - Prader-Willi Syndrome Association | USAAdvocacy2024-Rare-Roadmap_Rare-Research.pdfGlobal PWS Registry - Prader-Willi Syndrome Association | USATREND Community - Prader-Willi Syndrome Association | USAHelp Expand Disability Services for PWS – Share Your Story - Prader-Willi Syndrome Association | USAFamily SupportAdults with PWS: Living a Happy, Healthy Life - Prader-Willi Syndrome Association | USAC15 Foundation – Where Unlimited Potential Can Grow and ThriveAffecting Sleep with PWS - Prader-Willi Syndrome Association | USASubmit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USAResearchParent perceptions of genetic diagnosis in the inpatient setting in the neonatal intensive care unit (NICU), pediatric intensive care unit (PICU), and cardiac care unit (CCU)Aardvark Therapeutics HERO Trial: U.S. Sites Now Open - Prader-Willi Syndrome Association | USASeattle, WashingtonSeattle Children's HospitalContact: Isabella Niu, MD / Stephanie PurdyPhone: (206) 987-2640Email: [email protected]www.heroforpws.comPrader-Willi Syndrome Clinical Scholarship Announcement - Prader-Willi Syndrome Association | USARequest for Prader-Willi Syndrome Research Grant ApplicationsAnnouncements/Resource SpotlightNICU-Booklet-Rebranded-2022.pdfIntro Music: https://www.bensound.com/ License certificate #2242442



