PWS United
PWS United
PWSA | USA
Ep59 Pulse 131: Virtual Gala Auction, Care Until Cure, Give Kids a Chance Act, NICU and Newborns
38 minutes Posted Sep 23, 2025 at 10:00 am.
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The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 
24 Hour Crisis Line: 941-312-0400
Gala Live Auction
PWSA | USA's 50th Anniversary: Journey of Hope Gala AUCTION
50th-Gala-How-to-Bid-on-the-Silent-Auction.pdf
PWSA Memory
1982_Vol-VIII-N5-Sept-Oct-1982.pdf
Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA
Events
PWSA | USA's 50th Anniversary: Journey of Hope Gala - Campaign
Fundraisers
2nd Annual Dance Silly for Prader-Willi - Prader-Willi Syndrome Association | USA
Cocktails for a Cause- A Night for Prader-Willi Syndrome - Campaign
Answers for Audrey - Campaign
Prader-Silly: A Night of Rare Laughs - Prader-Willi Syndrome Association | USA
PWSA Fundraising Pages - Campaign
Spotlight on Hope
Rising Star in the PWS Community and Beyond - Prader-Willi Syndrome Association | USA
Share Your Story - Prader-Willi Syndrome Association | USA
Advocacy
2024-Rare-Roadmap_Rare-Research.pdf
Global PWS Registry - Prader-Willi Syndrome Association | USA
TREND Community - Prader-Willi Syndrome Association | USA
Help Expand Disability Services for PWS – Share Your Story - Prader-Willi Syndrome Association | USA
Family Support
Adults with PWS: Living a Happy, Healthy Life - Prader-Willi Syndrome Association | USA
C15 Foundation – Where Unlimited Potential Can Grow and Thrive
Affecting Sleep with PWS - Prader-Willi Syndrome Association | USA
Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA
Research
Parent perceptions of genetic diagnosis in the inpatient setting in the neonatal intensive care unit (NICU), pediatric intensive care unit (PICU), and cardiac care unit (CCU)
Aardvark Therapeutics HERO Trial: U.S. Sites Now Open - Prader-Willi Syndrome Association | USA
Seattle, WashingtonSeattle Children's HospitalContact: Isabella Niu, MD / Stephanie PurdyPhone: (206) 987-2640Email: [email protected]
www.heroforpws.com
Prader-Willi Syndrome Clinical Scholarship Announcement - Prader-Willi Syndrome Association | USA
Request for Prader-Willi Syndrome Research Grant Applications
Announcements/Resource Spotlight
NICU-Booklet-Rebranded-2022.pdf
Intro Music: https://www.bensound.com/  License certificate #2242442