The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 24 Hour Crisis Line: 941-312-0400Direct Support Professionals WeekIn Recognition of Direct Support Professionals - Prader-Willi Syndrome Association | USAPWSA MemoryThe Evolution of PWSA | USA’s Logo: A Journey of Hope and Transformation - Prader-Willi Syndrome Association | USAShare your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USAEvents PWSAUSA 50th Anniversary: Journey of Hope Celebration - CampaignHotel Options: Where Can We Take You? | Endless Experiences & Top Locations | Marriott BonvoyJourney of Hope Gala Honoree Spotlight: Dr. Moris Angulo, MD - Prader-Willi Syndrome Association | USAJourney of Hope Gala Honoree Spotlight: Janalee Heinemann - Prader-Willi Syndrome Association | USAFundraisersCocktails for a Cause- A Night for Prader-Willi Syndrome - CampaignPWSA Fundraising Pages - CampaignSpotlight on HopeShare Your Story - Prader-Willi Syndrome Association | USAAdvocacyCalling Minnesota PWS Families - Prader-Willi Syndrome Association | USACalling Montana PWS Families - Prader-Willi Syndrome Association | USACalling Alaska PWS Families - Prader-Willi Syndrome Association | USAHelp Expand Disability Services for PWS – Share Your Story - Prader-Willi Syndrome Association | USAFamily SupportGrandparent Perspectives - Prader-Willi Syndrome Association | USAAsk Nurse Lynn: Glucose Monitoring - Prader-Willi Syndrome Association | USASubmit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USAResearchVYKAT XR FAQ for ParentsSocial Skills in Children with Prader-Willi Syndrome: A Survey of Caregivers | QuestionPro Survey[email protected]Harmony Biosciences TEMPO Trial Webinar Recording: Harmony Biosciences TEMPO PWS Study WebinarAardvark Therapeutics HERO Trial: U.S. Sites Now Open - Prader-Willi Syndrome Association | USAGainesville, FloridaUF Shands Childrens HospitalContact: Jennifer Miller, MDPhone: (352) 294-8229Email: [email protected]www.heroforpws.comRecursos in Espanol:"Hoja de información del estudio clínico HERO" "El ensayo HERO" una folleto "Estudio HERO" Prader-Willi Syndrome Clinical Scholarship Announcement - Prader-Willi Syndrome Association | USARequest for Prader-Willi Syndrome Research Grant ApplicationsAnnouncements/Resource SpotlightSleep Summit - Prader-Willi Syndrome Association | USA This episode is sponsored by Soleno Therapeutics, the makers of VYKAT XR. While PWSA | USA does not endorse any specific treatment, we recognize the importance of sharing information about options available to the PWS community. Decisions about medical care should always be made in consultation with a qualified healthcare provider. Please visit www.vykatxr.com for information on use and potential side effects.Intro Music: https://www.bensound.com/  License certificate #2242442