Show notes
The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 24 Hour Crisis Line: 941-312-0400 Make-A-Will Month Your PWS Story Matters—And the Legacy You Leave Can Echo Far into the Future - Prader-Willi Syndrome Association | USA Planned Giving | PWSA USA PWSA Memory PWSA Memory: PWSA Conference Held with Prader-Willi California Foundation in 1999 - Prader-Willi Syndrome Association | USA Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA Events PWSAUSA 50th Anniversary: Journey of Hope Celebration - Campaign Fundraisers 2nd Annual Dance Silly for Prader-Willi - Prader-Willi Syndrome Association | USA Contact email: [email protected]16th Annual Hunter Lens Golf Tournament - Prader-Willi Syndrome Association | USAPWSA Fundraising Pages - Campaign Spotlight on Hope Volunteer Spotlight: Melissa Rivas - Spreading Joy, Creativity, and Hope - Prader-Willi Syndrome Association | USA Share Your Story - Prader-Willi Syndrome Association | USA Advocacy Exciting News! PWS Included in FY26 Department of Defense Appropriations Bill for Medical Research Medicaid-Fact-Sheet-1.pdf Help Expand Disability Services for PWS – Share Your Story - Prader-Willi Syndrome Association | USA Family Support Understanding Gastric Motility and Gastroparesis in PWS - Prader-Willi Syndrome Association | USA Building Our Social Skills (BOSS) Program Begins Again - Prader-Willi Syndrome Association | USA Ask Nurse Lynn: Leptin and HyperphagiaSubmit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA Research Harmony Biosciences TEMPO Trial Webinar: Webinar Registration - Zoom Aardvark Therapeutics HERO Trial: U.S. Sites Now Open - Prader-Willi Syndrome Association | USA www.heroforpws.com Announcements/Resource Spotlight Qualifying for Social Security Disability with PWS Intro Music: https://www.bensound.com/; License certificate #2242442



