Show notes
The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 24 Hour Crisis Line: 941-312-0400Scoliosis Awareness - Prader-Willi Syndrome Association | USAUnited in Hope ConferenceHome - 2025 United in Hope PWS ConferenceHow-to-Download-the-2025-United-in-Hope-PWS-Conference-Mobile-App.pdf2025 United in Hope Welcome Packet2025Family-Agenda-2.pdf2025ClinicalScientific-Agenda.pdf2025ProfessionalProviders-Agenda.pdf2025Adults-with-PWS-Agenda.pdf50th AnniversaryPWSA Memory: 1990_Vol-XVI-N1-Jan-Feb-1990.pdfShare your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USAEvents Prader Silly: A Night of Rare Laughs - CampaignFundraisersHunter Lens Golf Tournament - CampaignHummus, Tahini, and PWS Awareness - Prader-Willi Syndrome Association | USAUnited We Brunch - CampaignPWSA Fundraising Pages - CampaignSpotlight on HopeSpotlight on Hope: Ada Thrives and Shines - Prader-Willi Syndrome Association | USAShare Your Story - Prader-Willi Syndrome Association | USAAdvocacyHelp Expand Disability Services for PWS – Share Your Story - Prader-Willi Syndrome Association | USAFamily SupportAdults with PWS Advisory Board Spotlight: Abbott Philson - Prader-Willi Syndrome Association | USAFamily Resource Program - Parents/Caregiver Focus GroupsFamily Resource Program - Sibling Focus GroupsRecruitment – SibTime II -English - Influents InnovationsAsk Nurse Lynn: Osteoporosis, Calcium, Vitamin D - Prader-Willi Syndrome Association | USASubmit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USAResearchGet to Know Aardvark Therapeutics Phase 3 HERO PWS StudyHome | Hero TrialPrader-Willi Syndrome Clinical Scholarship Announcement - Prader-Willi Syndrome Association | USARequest for Prader-Willi Syndrome Research Grant Applications - Prader-Willi Syndrome Association | USAAnnouncements/Resource SpotlightVoice of the Patient Report: VOP-Report-4.30_.pdfPWS Externally-Led Patient-Focused Drug Development Meeting Intro Music: https://www.bensound.com/; License certificate #2242442



