PWS United
PWS United
PWSA | USA
Ep34 Pulse 119: Awareness, Staying Cool at Conference, Sibling Stories, Clinical Trial with Tirzepatide
38 minutes Posted Mar 25, 2025 at 7:26 pm.
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The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 
Awareness Topics
Nutrition in the PWS Family - Prader-Willi Syndrome Association | USA
Nutrition Discourse in the PWS Community - Prader-Willi Syndrome Association | USA
2025 DD Awareness Month: We’re Here All Year! – NACDD
Women in PWS: Moving Forward Together - Prader-Willi Syndrome Association | USA
What is neurodiversity? - Harvard Health
Neurodiversity and Prader-Willi Syndrome - Prader-Willi Syndrome Association | USA
United in Hope Conference
High-Level 2025 Conference Schedule
Home - 2025 United in Hope PWS Conference
Mural: 2025 PWS Conference Mural Photo Submission - Prader-Willi Syndrome Association | USA
For info on sponsorship opportunities: [email protected]
50th Anniversary
Journey of Hope Gala: PWSAUSA 50th Anniversary: Journey of Hope Celebration - Campaign
PWSA Memory: Vanja Holm's contribution to our knowledge of PWS - IPWSO
Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA
Events
Recognizing and Addressing Hyperphagia Early in Prader Willi Syndrome
Fundraisers
Zahra's Night of Light - Campaign
United We Brunch - Campaign
PWSA Fundraising Pages - Campaign
Spotlight on Hope
Share Your Story - Prader-Willi Syndrome Association | USA
Advocacy
Take Action: Help Pass the Sunshine Genetics Act in Florida! - Prader-Willi Syndrome Association | USA
Soleno Sibling/Family Member Stories: [email protected]
Soleno Caregiver Photo & Story Release Form (for minor siblings) Feb 2025.docx
Soleno Adult Sibling Photo & Story Release Form Feb 2025.docx
Family Support
Staying Cool at Conference - Prader-Willi Syndrome Association | USA
Ask Nurse Lynn: Respiratory Infections - Prader-Willi Syndrome Association | USA
Ask Nurse Lynn - Prader-Willi Syndrome Association | USA
Share Your "PWS in Adulthood" Story - Prader-Willi Syndrome Association | USA
Research
Tirzepatide Study: [email protected] or 206-987-2540
PWSA | USA Webinar: About Harmony Biosciences TEMPO PWS Clinical
Announcements/Resource Spotlight
What is Early Intervention?