Show notes
The latest in PWSA | USA events and PWS news in research, family support, and advocacy. EventsRare Disease DayRare Disease Day Hub: PWS - Rare Disease Day - Prader-Willi Syndrome Association | USARare Disease Week - EveryLife Foundation for Rare DiseasesLive Stream: Rare Disease Week - Attendee Corner Virtual Rare Disease Week - EveryLife Foundation for Rare DiseasesRare Disease Day 2025 – Join Us!Rare Disease Week Advocacy Calls to Action: Join Rare Disease Week Advocacy from Home - Prader-Willi Syndrome Association | USAUnited in Hope ConferenceHotel Locator: PWSA (Prader-Willi Syndrome Association) | 2025 International Prader-Willi Syndrome Conference - 6/24/25 - 6/28/25 - Phoenix, AZ | Tempe | Advanced Reservation SystemsHome - 2025 United in Hope PWS ConferenceMural: 2025 PWS Conference Mural Photo Submission - Prader-Willi Syndrome Association | USAFor info on sponsorship opportunities: [email protected]50th AnniversaryJourney of Hope Gala: Donate to Diamonds & Denim 2025Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USABIPOC Listening Sessions: Listening Session: Prader-Willi SyndromeFundraisersPrader-Willi Hot Stove | Powered By GiveSmartPWSA Fundraising Pages - CampaignSpotlight on HopeNew Mexico teen receives national acclaim for Girl Scout Gold Award project - KOB.comShare Your Story - Prader-Willi Syndrome Association | USACall to Action!Call to Action: Save Our Clinical Trials - Prader-Willi Syndrome Association | USAAdvocacyAardvark Therapeutics Rings the Closing Bell | NasdaqFamily SupportCelebrating National Caregivers Day 2025 - Prader-Willi Syndrome Association | USAAsk Nurse Lynn: Memory, Confabulation, and Aging in PWS - Prader-Willi Syndrome Association | USAAsk Nurse Lynn - Prader-Willi Syndrome Association | USAShare Your "PWS in Adulthood" Story - Prader-Willi Syndrome Association | USAResearchNew Project Seeks to Identify Characteristics that Predict Challenging Behaviors in PWS - Prader-Willi Syndrome Association | USATwins & Prader-Willi Syndrome SurveyAnnouncements/Resource SpotlightCall for Nominations or Board of Directorsmailto:[email protected]LisaGrazianoLMF[email protected]Raise-Your-Voice-Toolkit-PWSA-USA-Revised-Version-2021.pdf



