PWS United
PWS United
PWSA | USA
Ep28 Pulse 116: Growth Hormone Pioneer, Advocacy Wins, TREND Report on Behavior, Job Announcement
38 minutes Posted Feb 11, 2025 at 10:25 pm.
0:00
38:33
Download MP3
Show notes
The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 
Events
Hotel Reservations: Arizona Grand Resort & Spa - Reservations - Room Availability Search
Hotel Locator: PWSA (Prader-Willi Syndrome Association) | 2025 International Prader-Willi Syndrome Conference - 6/24/25 - 6/28/25 - Phoenix, AZ | Tempe | Advanced Reservation Systems
Home - 2025 United in Hope PWS Conference
For info on sponsorship opportunities: [email protected]
Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA
Prader-Willi Hot Stove | Powered By GiveSmart
Donate to Diamonds & Denim 2025
PWSA Fundraising Pages - Campaign
Rare Disease Day 2025 – Join Us!
Spotlight on Hope
Spotlight on Hope: Cam, PWS Warrior - Prader-Willi Syndrome Association | USA
Share Your Story - Prader-Willi Syndrome Association | USA
PWS United
PWS United Podcast - YouTube
Advocacy
Victory for the PWS Community in Illinois - Prader-Willi Syndrome Association | USA
Illinois General Assembly - Bill Status for SB1651
Illinois General Assembly - Bill Status for HB2541
[email protected]
Rare Disease Advisory Council - Frequently Asked Questions - National Organization for Rare Disorders
Find your State Legislator: p2a.co/O6Zyn8Q
Family Support
Steps Toward More Independent Living - Prader-Willi Syndrome Association | USA
Ask Nurse Lynn - Prader-Willi Syndrome Association | USA
Share Your "PWS in Adulthood" Story - Prader-Willi Syndrome Association | USA
Research
TREND Report on PWS and Emotional and Behavioral Patterns: 2025_1_31_FINAL_PWS_Report_3.pdf
Harmony Biosciences Initiates TEMPO PWS Study - Prader-Willi Syndrome Association | USA
Announcements/Resource Spotlight
PWSA | USA Employment - Prader-Willi Syndrome Association | USA
Stacy Ward email for resume: [email protected]
Resources A-Z: Behavior - Prader-Willi Syndrome Association | USA