Show notes
In this Pulse episode, Carrie and Anne discuss the holidays, the upcoming close of Angel Drive, Stacy's message of gratitude and progress, a young marathon runner with PWS, Rare Aware Art deadline, 2025 International conference, Hot Stove save the date, Inclusive Advocacy in Action, James and Elaine Towle's "Our Stories" video, year-end highlights for advocacy, the latest PWS in Adulthood blog, an Ask Nurse Lynn question about Lorazepam, international book award for Destiny Pacha, call for abstracts for Clinical and Scientific program, ECHO webinar library, our blog on traveling with medication, and an expression of our gratitude for the PWS community and those who have listened, reviewed, and supported the PWS United podcast as we continue this initiative. Happy Holidays to all the PWS families and beyond!Emails:Join BIPOC Affinity Group: [email protected]Share PWS in Adulthood Blogs: [email protected]LINKSAngel Drive 2024 - Prader-Willi Syndrome Association | USAHope in Action: A Message of Gratitude and Progress from PWSA | USAPWS Rare Aware Art Share - Prader-Willi Syndrome Association | USAHome - 2025 United in Hope PWS ConferenceSpotlight on HopeKlara on the Run - Prader-Willi Syndrome Association | USAAdvocacyEmpowering Change: Inclusive Advocacy in Action - Prader-Willi Syndrome Association | USAJim's Adult Journey with Prader-Willi SyndromeAdvocating for Rare Diseases: Year-End Highlights and Uncertain Next Steps - Prader-Willi Syndrome Association | USAFamily SupportManaging Living Situations - Prader-Willi Syndrome Association | USAAsk Nurse Lynn: Tapering Lorazepam - Prader-Willi Syndrome Association | USAEmbracing Differences | The Journey Behind "It Starts With Hello: Katie’s Story About Prader-Willi Syndrome" - Prader-Willi Syndrome Association | USAResearchFDA Extends Review Period for DCCR: What It Means for the PWS Community - Prader-Willi Syndrome Association | USACall for Abstracts: Conference 2025 - IPWSOPWSA | USA ECHO 4 PWS - YouTubeResource SpotlightHow To Travel with Refrigerated Medication - PWSA USA



