Show notes
The latest in PWSA | USA events and PWS news. LINKSDonate: Angel Drive 2024 - Prader-Willi Syndrome Association | USAPWSA | USA Hope in Action: Grandparents’ Stories of Love and ResilienceShare your Spotlight on Hope: Share Your Story - Prader-Willi Syndrome Association | USA2025 United in Hope PWS ConferenceSubmit to the Rare Aware Art Share: PWS Rare Aware Art Share - Prader-Willi Syndrome Association | USARare Aware Art Share Gallery: Rare Aware Art Share Portfolio 2024 - Prader-Willi Syndrome Association | USABIPOC Affinity Group: BIPOCPWS@gmail.comJoining Georgia Advocacy: dlantz@pwsausa.orgConway Family Soleno video: A Family’s Journey Managing Prader-Willi SyndromeRare-Pediatric-Disease-Priority-Review-Voucher-Program-Reauthorization-Community-Letter-1.pdfThe (Sometimes Messy) Details of Life in a Clinical Trial - Prader-Willi Syndrome Association | USAAsk Nurse Lynn: When to Start Growth Hormone - Prader-Willi Syndrome Association | USAFamily Support Webinars YouTube Library: 2024 PWSA | USA Family Support Webinars - YouTubeHarmony Biosciences Initiates TEMPO PWS Study - Prader-Willi Syndrome Association | USAAbstracts for Clinical and Scientific Program: Conference 2025 - IPWSORegister for ECHO 4 PWS webinar "Orthopedics and PWS": Meeting Registration - ZoomProject ECHO: Project Echo - Prader-Willi Syndrome Association | USAMake an Impact - PWSA USA



