Show notes
The latest in PWSA events and PWS news in research, family support, and advocacy with PWSA | USA's Director of Development, Melanie McDonald, filling in for Carrie. Hear about the launch of our Angel Drive campaign and how you can donate, the latest happenings on Capitol Hill, support for PWS families affected by the recent hurricanes, PWS in adulthood blog series, upcoming family support webinars, workshops, and offerings and Family Caregiver Month, an update on one family's clinical trial journey, the newest TEMPO clinical trial site, ECHO webinar series, and Melanie's mission moment. LINKShttps://www.pwsausa.org/angel-drive-2024/About PWSA | USA's Hope in Action Serieshttps://www.pwsausa.org/get-involved/share-your-story/Home - 2025 United in Hope PWS ConferencePWS Rare Aware Art Share - Prader-Willi Syndrome Association | USAHurricane Relief: [email protected]g, or call us directly at 941-312-0400Events from November 1 – June 24, 2025 – Prader-Willi Syndrome Association | USAPWSA | USA Advocates for PWS on Capitol Hill and NORD Breakthrough Summit - Prader-Willi Syndrome Association | USAWorkplace Assistance - Prader-Willi Syndrome Association | USASpreading Joy: Operation Holiday Cheer Returns to Support PWS Families in 2024 - Prader-Willi Syndrome Association | USAAsk Nurse Lynn: Emergency Information Folder - Prader-Willi Syndrome Association | USASelf-Care for Caregivers - Prader-Willi Syndrome Association | USABabysitter and Care Provider Training: Webinar Registration - ZoomTREND Webinar PWSAJournaling and Story Sharing Workshop: [email protected]Baseline and Video Interview - Prader-Willi Syndrome Association | USATEMPO PWS Clinical Study For Prader-Willi Syndrome - Enroll TodayCall for Abstracts: Conference 2025 - IPWSOProject Echo - Prader-Willi Syndrome Association | USAMeditation, Mindfulness, and Self-Care - Prader-Willi Syndrome Association | USA



