Carrie and Anne, from PWSA | USA's Communication Dept., share the news and resources from PWSA | USA's Pulse newsletter, edition #104. Our Pulse covers upcoming fundraising events and conferences, advocacy highlights and actions, family support resources and offerings, the latest in research, trial opportunities and more. The Pulse newsletter is published digitally every Friday. Future podcast Pulse episodes will air the following Tuesday. 
Links:
<a href='https://www.pwsausa.org/make-an-impact/planned-giving/?bbeml=tp-qsi9xXB5y0KqhGk8MXKG2Q.j0tzos5Wg40Wdzd_nAvtJbg.rUtu8eWppe0Sro_gii2R26g.lhw_lIvdogEeVqwd0W_DGKg'>Planned Giving Webpage</a>
<a href='https://www.pwsausa.org/less-than-no-one-a-fathers-battle-cry/?bbeml=tp-qsi9xXB5y0KqhGk8MXKG2Q.j0tzos5Wg40Wdzd_nAvtJbg.rUtu8eWppe0Sro_gii2R26g.lxgWHHFgnZ0Kw4HI5v5j-0w'>"Less Than No One" Spotlight</a>
<a href='https://pwsausaevents.cventevents.com/event/04353c7a-d6b1-45f9-9d6f-48acda9cd07e/summary?bbeml=tp-qsi9xXB5y0KqhGk8MXKG2Q.j5214WrdsHkKwBi4kXNzpNw.rjXUvWfY98EWSKQsDKZ70mw.lrOSKeBN5qkCgRZJoSj7wkQ&amp;bbeml=tp-qsi9xXB5y0KqhGk8MXKG2Q.j0tzos5Wg40Wdzd_nAvtJbg.rUtu8eWppe0Sro_gii2R26g.lwkCeedfbxEenvaqhUPXd3w'>United in Hope Conference</a>
<a href='https://www.pwsausa.org/2025-pws-conference-mural-photo-submission/?bbeml=tp-qsi9xXB5y0KqhGk8MXKG2Q.j0tzos5Wg40Wdzd_nAvtJbg.rUtu8eWppe0Sro_gii2R26g.lMHHhtG3l9EyBbzCfmcufzg'>United in Hope Mural</a>
<a href='https://www.thermcfoundation.org/golf2024?bbeml=tp-qsi9xXB5y0KqhGk8MXKG2Q.j0tzos5Wg40Wdzd_nAvtJbg.rUtu8eWppe0Sro_gii2R26g.l96hb80W-_E-NZjMmgf3gjg'>RMC Inaugural Fundraiser</a>
<a href='https://www.pwsausa.org/thank-you-congressional-letter-sign-ons/?bbeml=tp-qsi9xXB5y0KqhGk8MXKG2Q.j0tzos5Wg40Wdzd_nAvtJbg.rUtu8eWppe0Sro_gii2R26g.l1xrdX9rWtU-7fbM9IzQeyw'>Congressional Letter of Support Blog Post</a>
<a href='https://www.pwsausa.org/pws-military-families-form/?bbeml=tp-qsi9xXB5y0KqhGk8MXKG2Q.j0tzos5Wg40Wdzd_nAvtJbg.rUtu8eWppe0Sro_gii2R26g.lR-HofZ5g2UarfMknxNxirg'>Military Family Form</a>
<a href='https://www.pwsausa.org/pws-rare-aware-art-share/?bbeml=tp-qsi9xXB5y0KqhGk8MXKG2Q.j0tzos5Wg40Wdzd_nAvtJbg.rUtu8eWppe0Sro_gii2R26g.lpm3d7y_ybkiBRc0izflgxQ'>Rare Aware Art Share Submission Form</a>
<a href='https://www.pwsausa.org/interdependence/?bbeml=tp-qsi9xXB5y0KqhGk8MXKG2Q.j0tzos5Wg40Wdzd_nAvtJbg.rUtu8eWppe0Sro_gii2R26g.lS6LRwVJFKUa0usGT2FwSTA'>Interdependence Blog Post</a>
<a href='https://www.pwsausa.org/ask-nurse-lynn-bowel-movements-and-gi-concerns/?bbeml=tp-qsi9xXB5y0KqhGk8MXKG2Q.j0tzos5Wg40Wdzd_nAvtJbg.rUtu8eWppe0Sro_gii2R26g.lCSlRYwLAiECZGh6qWRs1-A'>Ask Nurse Lynn "BM &amp; GI Concerns"</a> 
<a href='https://www.pwsausa.org/aging-research-in-prader-willi-syndrome/'>Aging research Webinar Recordings</a>
<a href='https://ipwso.org/news-events/conference-2025/?bbeml=tp-qsi9xXB5y0KqhGk8MXKG2Q.j0tzos5Wg40Wdzd_nAvtJbg.rUtu8eWppe0Sro_gii2R26g.lpVkVjbba00qeaowSi8AKyw'>Call for Abstracts</a>
<a href='https://www.pwsausa.org/events/projectecho/?bbeml=tp-qsi9xXB5y0KqhGk8MXKG2Q.j0tzos5Wg40Wdzd_nAvtJbg.rUtu8eWppe0Sro_gii2R26g.lu5wo3wBQKkWx-uoIQH3Nng'>Project ECHO</a> 
<a href='https://www.youtube.com/watch?v=s9BU2c2uuO0'>Acadia Webinar Recording</a>
<a href='https://www.pwsausa.org/trend-community-launch-report/?bbeml=tp-qsi9xXB5y0KqhGk8MXKG2Q.j0tzos5Wg40Wdzd_nAvtJbg.rUtu8eWppe0Sro_gii2R26g.lP4ilG-VKIkeHUgnND6YiVQ'>TREND Launch Report</a>
<a href='https://www.pwsausa.org/harmony-biosciences-initiates-tempo-pws-study/?bbeml=tp-qsi9xXB5y0KqhGk8MXKG2Q.j0tzos5Wg40Wdzd_nAvtJbg.rUtu8eWppe0Sro_gii2R26g.lEkz2n6gTOEue73fy0mbpKA'>Harmony TEMPO Trial Sites</a>
<a href='https://www.pwsausa.org/harmony-biosciences-initiates-tempo-pws-study/?bbeml=tp-qsi9xXB5y0KqhGk8MXKG2Q.j0tzos5Wg40Wdzd_nAvtJbg.rUtu8eWppe0Sro_gii2R26g.lEkz2n6gTOEue73fy0mbpKA'>Gastroparesis Article</a>

Back to School: PWSA | USA Special Edition Pulse

Welcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA.

This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resources with those living with PWS and their supporters. 

Join us in our mission to enhance the quality of life and empower those affected by Prader-Willi syndrome.