<p>Emily has been battling serious illnesses, PSC, UC since she was 19, and liver cancer at 33. As a mother, she has done her best to create an optimistic life with as little fear for her young son as possible as she has survived a colectomy, cancer treatment and a liver transplant. She discusses what it was like to be in survival mode for most of her adult life, what it meant to be a “sick mom” and how her outlook since transplant is all about her zest for life and what might come next.</p> <p>Bonus resource mentioned by PSC Mami at end of episode: <a href= "https://www.youtube.com/watch?v=uVpBz65YaJI">Selfless Snowman | Doc McStuffins </a></p>

Heather has 2 girls, a new liver, and joy

PSC Mami: Stories at the intersection of PSC and parenthood. 

You are diagnosed with a rare, incurable disease. You are young. You had a vision for your future. You wanted kids. But can you? As a parent you want the best for your kids, but then they are diagnosed with PSC, what does their future hold? 
People who have been there talk about how a diagnosis of Primary Sclerosing Cholangitis, a rare autoimmune disease, reshaped their vision of their lives and parenthood.