MyFSHD
MyFSHD
Peter L Jones, PhD
MyFSHD Rare Disease Day with Dr. Ryan Wuebbles, FSHD patient and neuromuscular disease researcher.
59 minutes Posted Feb 25, 2022 at 9:05 pm.
0:00
59:59
Download MP3
Show notes

Dr. Peter Jones sits down with Dr. Ryan Wuebbles to discuss his journey with FSHD first as a patient and now as a researcher.  Covers some FSHD basics, research approaches, and how you can be the best advocate for FSHD.

---
Send in a voice message: https://podcasters.spotify.com/pod/show/peter-l-jones/message