Myeloproliferative Neoplasms CancerCare Connect Education Workshops

- Overview of Cancer Survivorship - Managing Post Treatment Side Effects/Late Effects - Quality-of-Life Concerns - Fear of Recurrence - Finding Your New Normal - The Importance of Treatment Summaries and Encounter Notes - Follow-Up with Your Oncologist and Primary Care Doctor, Including Discussion of Health Screening and Concerns - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions, and Discussion of OpenNotes - Questions for Our Panel of Experts

- Understanding the Future of Cancer Research & Clinical Trials - Increased Focus on Earlier Detection & Treatment of Cancer - Health Care Disparities Research - Enhanced Knowledge of the Molecular Portrait of Cancer - Artificial Intelligence (AI) Driven Approaches for Diagnosis & Treatment of Cancer - Microsatellite Instability (MSI): Mutations in DNA Mismatch Repair Genes – Implications for Treatment - Immunotherapy - CAR T Cell Therapy - Immune Checkpoint Inhibitors & Blockade - Monoclonal Antibodies - Cancer Treatment Vaccines - Immune System Modulators - Targeted Immunotherapies - Radiopharmaceutical Therapy (RPT) - Antibody-Drug Conjugates (ADCs) - Robotic Surgery - Additional Focus on Lifestyle, Exercise, Nutrition & Hydration - Increasing Role of Telehealth/Telemedicine Appointments - Questions for Our Panel of Experts

- Disproportionate Burden of COVID & Cancer on People of Color - Social Determinants of Health, Including Languages Spoken & Health Literacy - Influence of the Local & Regional Environment in Which You Live on Your Access to Oncology Care - Effect of COVID on Health Care Systems - How Race May Impact Your Access to Cancer Treatment, Management of Treatment Side Effects & Pain Management - How to Find the Right Cancer Care Team for You - Access to Cancer Treatment in the LGBTQI+ Community - Costs of Housing & Cancer Treatment - Food & Pharmacy Deserts - Food Insecurity: Tips to Increase Your Access to Health Promoting Nutrition - Work Commitments & Transportation to Treatment - Your Rights Under the Americans with Disability Act (ADA) & Family and Medical Leave Act (FMLA) - How Telehealth May Help You with Greater Health Equity - Practical Tips to Cope with Health Care Disparities: Valuing Your Identity - Guidelines for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions, Trusted Family/Friend to Join the Appointment, Quality-of-Life Concerns & Discussion of OpenNotes - Key Questions to Ask Your Health Care Team - Questions for Our Panel of Experts

- Understanding Precision Medicine: Overview & Value of Precision Medicine - How Precision Medicine is Different from Targeted Treatments? - Precision Medicine Role’s in Informing Treatment Decisions: Predicting Response to Treatment - The Role of Precision Medicine in Deciding the Treatment for Lung Cancer, Leukemia & Colon Cancer - Talking with Your Health Care Team About Precision Medicine & its Benefits - The Role of the Pathologist - OpenNotes – Asking Your Health Care Team & Pathologist to Help You Understand OpenNotes - How Precision Medicine Contributes to Treatment Options & Quality of Life - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology & Prepared List of Questions - Questions for Our Panel of Experts

- Overview of Blood Cancer Treatments - Understanding Treatment Side Effects - Working with Your Health Care Team to Manage Each Treatment Side Effects - Dealing with Blood Cancer Treatments & Other Co-Morbid Health Treatments - Adjusting to Your Blood Cancer Treatment Over Time - The Importance of Taking Your Blood Cancer Treatment on Schedule – Adherence - Can I Take My Medications at Any Time of the Day? - The Value of Time of Day Consistency in Taking Your Pills - Challenges to Taking Your Treatment on Schedule - Practical Tips & Opportunities to Overcome Them - Review of Resources to Remind You to Take Your Pills on Schedule - Planning Ahead: Lead Time in Refilling Prescriptions, Weekends, Travel & Holidays - Communicating with Your Hematology Oncology Team About Adherence, Including Your Pharmacist - Questions for Our Panel of Experts

- Definition of a Caregiver - What Research Tells Us About Caregivers’ Well Being - Caregiving for an Older Adult - Caregiving for a Younger Adult - Couples, Partners, Siblings, & Friends - Challenges for Caregivers of Cancer Survivors - Family, Partner, & Friend Communication - Care Coordination Challenges & Tips - Stresses on Family, Partners, Friends, & Loved Ones - Coping with Holidays, Birthdays, & Special Occasions - Managing Family, Friends, Partners, & Traditions - Long-Distance Caregiving - Practical Tips for Managing Caregivers’ Stress - Strategies for Self-Care - The Increasing Role of Telemedicine Appointments - Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology & Prepared List of Questions - Questions for Our Panel of Experts

- How Being a Member of Diverse Communities May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects & Pain Management - What to Expect from Your Relationship with Your Health Care Team: Is Your Health Care Team Providing You with Equitable, Excellent Care - What to Consider When Selecting a Cancer Care Team & Treatment Facility - Languages Spoken & Diversity of the Health Care Team - What Is Cultural Humility & How Your Care Team Practices Cultural Humility - When to Seek a Second Opinion: Finding the Best Care - How to Request Copies of Treatment & Pathology Reports - Your Encounter Notes - Key Questions to Ask Your Health Care Team About Your Treatment Plan - How to Self-Advocate with Health Care Staff: Languages Spoken, Disability Services & Other Barriers to Health Equity - Health Literacy: How to Become More Knowledgeable & Satisfied with Your Care - Your Important Role in Shared Decision-Making - Tips to Communicate with Your Health Care Team to Determine if They are the Best Team for You - Guidelines to Improve Appointments with Your Health Care Team, Including Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts

- Overview of Common Eye & Vision Changes Related to Cancer Treatments - Discussion of Common Eye & Vision Changes, Including Causes & Risk Factors - Tips to Manage Dry Eyes, Watery Eyes, Itching Eyes, Blepharitis, Loss of Eyelashes, Changes in Vision, Cataracts, Floaters, & Flashing Lights - The Role of the Multidisciplinary Team - Tips to Manage Low Vision & How Eye Products Can Help You Manage Eye/Vision Changes - Clinical Trials & Communicating with Your Health Care Team - Guidelines for Eye Examinations & Check-Ups - Quality-of-Life Concerns - Questions for Our Panel of Experts

- Overview of MPN-Related Weight Changes - Causes of Your Weight Loss or Weight Gain - Strategies for Managing Your Weight - Common Weight-Related, Eating, & Hydration Questions to Ask Your Doctor & Health Care Team - Nutrition & Hydration Concerns & Tips - Benefits of Physical Activity - How Meditation & Integrative Medicine May Help You Cope - Guidelines to Prepare for Telehealth/Telemedicine Appointments including: Technology, Prepared List of Questions, Quality-of-Life Concerns & Discussion of OpenNotes - Questions to Ask Our Panel of Experts

- Overview of the Different Names for Biomarker Testing & Why They Can Be Helpful for Treatment - Tumor Marker Testing, Genomic Profiling, Genomic Sequencing, Molecular Profiling, Next Generation Sequencing - The Relationship Between Biomarker Testing & Precision Medicine - Types of Biomarker Tests for Cancer Treatment - Do I Need Biomarker Testing for My Cancer? - How is Biomarker Testing Done? Using Samples of Your Cancer & Your Healthy Cells - Samples are Sent to the Lab Where Pathologists Test for Certain Biomarkers - Some Results Might Lead to Genetic Testing – Inherited or Germline Mutations - Some Biomarker Testing is Done as Part of Clinical Trials for New Cancer Treatments - Other Uses of Biomarkers – Determining a Person’s Cancer Risk or Finding Cancer - Biomarkers Used to Show if a Treatment is Effective or May Show if Cancer is Returning – Examples Will Be Provided - Biomarkers Play Such an Important Role in Choosing the Best Treatment for You & in Determining Your Progress - Questions for Our Panel of Experts