Legally Blonde & Blind
Legally Blonde & Blind
Marissa Nissley
23. Making our Voices Heard: Albinism and Human Rights Advocacy (feat. Tess Ballis)
42 minutes Posted Dec 1, 2022 at 1:18 pm.
Introduction, Background, and Content Warning
What sparked your interest in albinism and human rights advocacy?
A crash course on albinism and human rights
What is currently being done in the nonprofit space to address these issues?
Where are the gaps? What more would you like to see done?
What made you want to speak publicly about albinism & human rights?
How has advocacy work influenced your personal relationship with albinism?
Why do you choose to use the phrase Person with Albinism?
How can other people with albinism process these harsh realities and feel empowered rather than discouraged?
How can people get involved? What nonprofits and NGOs should people check out?
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Show notes
How can we help people with albinism facing violence and discrimination in East Africa as college students halfway across the world? On Episode 23 of Legally Blonde & Blind, Tess Ballis joins Marissa to discuss healthcare, education, and dispelling harmful myths surrounding albinism at a grassroots level. She explains how advocating for human rights has boosted her confidence and encouraged her to embrace albinism as part of her identity. Listeners will learn about concrete actions they can take no matter what their resources are.
Tess Ballis is a junior at Northwestern University studying history and political science. Her parents founded the nonprofit Vision for Tomorrow, which seeks to empower people with low vision through research, advocacy, and awareness campaigns. She was a keynote speaker at the 2018 Skin Cancer Foundation of South Africa Summit and gave a TEDx Talk titled “Albinos Don’t Have Souls: What it means to be human from someone who has been told she is not.”
"I just want people to realize we—as people with albinism—have a genetic condition. It affects our hair, our skin and our eyes, but that is the only difference. We are human beings, the same as anyone else."
Connect with Legally Blonde & Blind!
Website - https://www.legallyblondeblind.com/
Instagram - https://www.instagram.com/legallybb_/?hl=en
Facebook - https://www.facebook.com/legallybb/
LinkedIn - https://www.linkedin.com/company/legally-blonde-blind/
Connect with Tess!
Standing Voice Interview https://news.standingvoice.org/tess-ballis
TEDx Talk - https://youtu.be/qhoGts4PGXM
Key Points:
Resources:
https://news.standingvoice.org/tess-ballis
https://visionfortomorrow.org/
https://www.underthesamesun.com/
https://www.ohchr.org/en/stories/2022/03/attacks-against-people-albinism-are-hate-crimes-un-albinism-expert
https://www.hrw.org/news/2019/07/01/out-shadows-resilience-and-courage-people-albinism-mozambique
https://www.opensocietyfoundations.org/voices/we-are-tired-of-being-ignored
https://www.opensocietyfoundations.org/voices/q-and-a-an-international-movement-for-albinism-rights
https://www.voanews.com/a/africa_women-mothers-children-albinism-suffer-worst-discrimination-report-finds/6185246.html
https://www.thejfa.com/read/on-the-african-continent-discrimination-against-people-with-albinism-is-intensifying
https://minorityrights.org/programmes/library/trends2020/tanzania/
Transcript - https://www.legallyblondeblind.com/post/23-making-our-voices-heard-albinism-and-human-rights-advocacy-feat-tess-ballis