LabMind
LabMind
ARUP Laboratories
Amplifying the Voice of the Patient
34 minutes Posted Jan 10, 2023 at 10:00 pm.
0:00
34:07
Download MP3
Show notes
Within our current healthcare institutions, patients’ voices are often drowned out by the voices of providers, scientists, and industry. Andrea Downing’s life work is to fix this. As a BRCA1 cancer previvor and a patients’ rights activist, she was a spokesperson for one of the plaintiffs in the U.S. Supreme Court case that ultimately overturned gene patenting. Years later, while moderating an online patient support group, she discovered a major privacy vulnerability in Facebook, which led her...