The HSE today has approved a new offer from drug firm Biogen over ‘Skyclarys’, which will now be available with reimbursement to Friedreich’s Ataxia patients. This comes after mounting pressure, and months of campaigning…

Joining Clare McKenna to discuss this is Teresa Kane, a mother of two children with Friedreich’s Ataxia and Niamh Ní Hoireabhaird, who lives with Friedrich’s Ataxia…