Help! I'm Hypermobile
Help! I'm Hypermobile
Alexandra Orfanides
Modelling, hEDS, and Disability: Real Talk with Emily Massey
59 minutes Posted Apr 14, 2026 at 4:56 pm.
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What does it really look like to be a working model with hEDS, chronic illness, and disability?


I'm joined by editorial and runway model Emily Massey for an honest conversation about navigating the modelling industry with a chronic illness, including the parts that rarely get talked about.


Emily shares the reality of working as a model while navigating chronic illness and disability, including:

●    How she flows between poses to rest and reposition her joints during shoots

●    The challenges of working when you're not feeling well— and why that's often the reality

●    Navigating dating and friendships in the context of chronic illness

●    What dynamic disability means to her, and how it shapes her day-to-day life


This episode is a must-listen for anyone with a chronic illness or disability who is navigating work, relationships, and identity — and for anyone who wants to understand what life with hEDS/HSD really looks like.


THANK YOU for listening, and remember: incurable does not mean untreatable ❣️

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📚 Join the waitlist for the May 12 2026 release of Help! I’m Hypermobile (and get your free PDF companion guide in the meantime): hypermobilityhq.com/book


📸 Follow me @hypermobilityhq on Instagram, TikTok, and YouTube


⭐ Follow Emily on Instagram @emily_masseyy


🎙 Learn more about the podcast: hypermobilityhq.com/podcast


💌 Guest info, media, and resources: hypermobilityhq.com/blog

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Medical disclaimer:

This podcast is for educational purposes only and does not constitute medical advice. Always consult a qualified healthcare professional before making changes to your training, exercise, or healthcare plan.

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#Hypermobility #hEDS #Chronicillness