Meet my friend Emmy. I am so grateful she was willing to share with me the ups and downs of being a child and now an adult with hearing loss. Emmy is the founder of nxtgensticklers a community group for people with Sicklers Snydrome.More information about the community can be found here:www.nextgensticklers.orgFind the transcript of the interview here:Episode 26: Emmy...... Founder of nxtgensticklers a community group for people with Sticklers Syndrome and an Adult who's Hard of HearingumentWilling to share your story? Apply here: https://forms.gle/8zmsWLk43PyT5C838Follow us on Instagram @hearing_mamas_tribeThis podcast is intended for families to share their own personal journeys without judgment. The stories they share are their own. Their stories are their own personal beliefs. Please respect and honor each family's choices.The professionals and others who share their own opinions.All information presented is educational and should not be misconstrued as personal medical advice.