Fibromyalgia Podcast®
Fibromyalgia Podcast®
Tami Stackelhouse
Tired of being held prisoner in your own body? Tami Stackelhouse is an author and Master Certified Fibromyalgia Coach® who has gone from disabled to thriving. In this podcast, Tami brings together top fibromyalgia experts and advocates, creating a virtual dream team to help you take back control of your life and health. From doctors and researchers in the traditional medical setting, to coaches and providers of alternative and natural treatment options, this podcast will empower you to feel your best and set you free to live a fibro life you love.
Fibromyalgia Stories of Hope & Healing #7 (Certified Advisors)
For many of us, the fibromyalgia diagnosis left us feeling like, “Who am I now?” Fibromyalgia changes how we see ourselves, relate with others, and interact in our lives. What if you could significantly improve your quality of life? Or have the energy to do the things you love? Or to travel and enjoy yourself? Today is the seventh installment of our Stories of Hope and Healing. Tami interviews five recent graduates of the Certified Fibromyalgia Advisor® program, and they share their journeys from pre-diagnosis to where they are now after graduation. One graduate even improved by 87%, going from the most symptomatic student in class to being essentially symptom-free today. In this episode, you’ll hear how Lisa’s fibromyalgia diagnosis led to an existential crisis and feelings of being spiritually unmoored, how her coach, Robin, helped to support her healing journey and build her healthcare team, celebrating the little wins with a “ta-da” list, the various approaches that contributed to Lisa’s 63% improvement in her fibromyalgia impact questionnaire score, the recognition that healing requires energy, resources to learn more about low-dose naltrexone, Lisa’s message for anyone dealing with a spiritual crisis, Kim’s post-diagnosis struggle with improving her symptoms after recognizing that the FDA-approved drugs were not a good fit for her, learning how to listen to what your body needs, how Kim’s coach, Robin, helped her to tune into your body’s voice, getting honest with yourself about the impact that fibromyalgia has on your life, how Kim used the tools she learned in class and her healthcare team to get through a recent significant fibro flare, the holistic changes that helped Kim improve her symptoms by 46%, recognizing the significance of an individual approach to symptom management, the far-reaching positive impact we can make by sharing what we know, the significant changes Connie has felt since going through the Certified Fibromyalgia Advisor® program and improving her symptoms by 87%, how Connie’s coach, Brenda, helped her in numerous ways throughout her healing journey, Connie’s thyroid health, the huge difference that finding the right diet has made for Connie, Susan’s experience of trying various integrative and regular doctors, diets, and treatments, the frustration of not finding a solution until discovering the Certified Fibromyalgia Advisor® program, how Susan’s symptoms impacted her career as a kindergarten teacher, techniques and strategies that helped to improve Susan’s quality of life, the ways that her coach helped with implementing the new strategies, giving yourself permission to take care of yourself without guilt, staying on top of your pain, Lauren’s deep dive into fibromyalgia resources right after her diagnosis, deciding to work with her coach, Julie, early in her journey and the impact she’s had on Lauren’s fibromyalgia journey, why coaching has been Tami’s secret weapon in managing her fibromyalgia, how you can join the next Certified Fibromyalgia Advisor® class, and more. If you've been looking for new ideas on your fibromyalgia healing journey, you’ll definitely find some in today's episode.       Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the resources mentioned in this episode, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need a good book to read? Download Tami's books for free. Ready to take back control of your life and health? Schedule a complimentary consultation with a Certified Fibromyalgia Coach®.
Aug 15, 2023
1 hr 9 min
Special #4 - How Do You Become a Fibro Coach?
Welcome to the final episode of our special Be a Coach series. So far, I’ve answered questions about our Certified Fibromyalgia Advisor® class and what it takes to become a Certified Fibromyalgia Coach®. Some of the topics covered in the first three parts of this special series were what a Certified Fibromyalgia Advisor® and a Certified Fibromyalgia Coach® is, the difference between the two, who makes a good Certified Fibromyalgia Coach® and who is better suited to be a Certified Fibromyalgia Advisor®, what you need and don’t need to become a Certified Fibromyalgia Advisor® or Certified Fibromyalgia Coach®, why the world needs fibro coaches, and why you should consider becoming one. In this final installment, I’m digging into the nuts and bolts of how you can become a Certified Fibromyalgia Advisor® or Certified Fibromyalgia Coach®; including the exact steps you need to take.       Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the Certified Fibromyalgia Advisor® class, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need a good book to read? Download Tami's books for free. Ready to take back control of your life and health? Schedule a consultation with a Certified Fibromyalgia Coach®.
Aug 8, 2023
29 min
Help Your Doctor Help You with Dr. Ginevra Liptan
As patients, we must take control of some aspects of our health care to get what we need. Many fibromyalgia patients are familiar with the feeling that we know more about fibromyalgia than our healthcare providers do. How can you get help from someone who knows less about your condition than you? When you combine that feeling with the broken healthcare system in the US and things like fibro fog, many of us leave our appointments feeling like we’re no better off than when we went in. Today's episode is a segment from our July Fibromyalgia Stories of Hope and Healing event featuring our special guest commencement speaker, Dr. Ginevra Lipton. In her speech, Dr. Ginevra breaks down the three main friction points and how you, as a patient, can help overcome them and help your doctor to help you. Dr. Ginevra discusses the knowledge gap between healthcare providers and patients and how it impacts fibromyalgia treatment, challenges of the fragmented and struggling US healthcare system, how fibro fog and other fibro factors affect the patient-doctor interaction, how resources like the Fibro Manual can help you bring the correct information to your provider, taking a curious, collaborative approach to your relationship with your healthcare provider, Dr. Ginevra’s tips for getting around the fragmented and siloed healthcare system, why you might want to request an extended appointment, the benefits of telemedicine especially for fibromyalgia patients, how you can maximize your appointment time regardless of fibro fog, why you should consider tracking your symptoms, taking control of certain aspects of your healthcare to ensure you receive the necessary support and treatment, and more. In addition to these tips, studies have shown that the more you work with a coach, the better your results will be. A fibro coach can help you prepare for your doctor visits and implement what your doctor has asked you to do. You don’t have to take this journey alone.     Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the resources mentioned in this episode, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need a good book to read? Download Tami's books for free. Ready to take back control of your life and health? Schedule a complimentary consultation with a Certified Fibromyalgia Coach®.
Aug 1, 2023
28 min
Special #3 - Why Should You Consider Being a Coach?
Welcome to episode 03 of our special Be a Coach Series. In this series, I answer questions about our Certified Fibromyalgia Advisor® class and what it takes to be a Certified Fibromyalgia Coach®. In episode one of the series, I explained what a Certified Fibromyalgia Advisor® is and what a Certified Fibromyalgia Coach® is. Episode two of the series was all about who makes a good coach and who is better suited to be an advisor. I also covered what you need and don’t need to become a Certified Fibromyalgia Coach®. In this episode, we’re taking a deeper look at why someone would want to become a Certified Fibromyalgia Coach®, why the world needs fibro coaches, and why you should consider becoming one.       Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the Certified Fibromyalgia Advisor® class, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need a good book to read? Download Tami's books for free. Ready to take back control of your life and health? Schedule a consultation with a Certified Fibromyalgia Coach®.
Jul 25, 2023
33 min
Becoming an Empowered Patient with Gisèle McDiarmid
Having been through the Western medical system for 20 years without meaningful change,  Gisèle McDiarmid decided to take her health into her own hands. She felt the need to explore further and find specialists who knew about invisible illnesses, and she finally received a diagnosis and the help she needed to rebuild her health. With that, she finally had enough energy to focus on empowering herself to maintain her health and well-being as much as possible without invasive interventions. That’s when she learned about the International Fibromyalgia Coaching Institute (IFC) and our Certified Fibromyalgia Advisor® program. Today Tami welcomes Certified Fibromyalgia Coach® Gisèle McDiarmid to share her experience in our training programs. In this conversation, Gisèle and Tami discuss Gisèle’s journey with fibromyalgia, multiple chemical sensitivities, and chronic fatigue syndrome, the struggle to find the right treatments and support, the importance of self-care and learning to prioritize your own wellbeing, the benefits of working with a coach, how Gisèle discovered the IFC and her decision to become a Certified Fibromyalgia Coach®, empowering yourself with knowledge and communication tools for doctors, the ins and outs of fibromyalgia, its symptoms, and management strategies, how having a support group can make a huge difference in your quality of life, what made the program pandemic-proof, how self-care benefits us and those around us, benefits of becoming a Certified Fibromyalgia Coach®, two of Gisèle’s client success stories with breast implant illness and long COVID, the value of having a coach that truly understands the experiences and challenges faced by fibromyalgia patients, recognizing that it is possible to have a better quality of life if you’re committed to taking better care of yourself, and more. For both Tami and Gisèle, being a coach has been their secret weapon in managing their fibromyalgia and helping others. No matter where you are now, don’t give up. You can find the right tools and support to manage your symptoms and improve your quality of life.     Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the resources mentioned in this episode, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need a good book to read? Download Tami's books for free. Ready to take back control of your life and health? Schedule a complimentary consultation with a Certified Fibromyalgia Coach®.
Jul 18, 2023
49 min
Special #2 - Who Makes a Good Coach?
Welcome to episode 02 of our special Be a Coach Series. In this series, I answer questions about our Certified Fibromyalgia Advisor® class and what it takes to be a Certified Fibromyalgia Coach®. I cover all the basics… the who, what, when, where, why, and even the how. Don’t understand what a Certified Fibromyalgia Coach® or Adviser is? No problem. Just pop on over to episode one of the series because that is exactly what we covered in that episode. In this episode, I’m covering the who. Who makes a good coach? Who makes a good Certified Fibromyalgia Coach®? Who makes a good Certified Fibromyalgia Advisor®? And, how do you know which one you might be? I also cover what I look for in the applications I accept into the training program and what you need and don’t need to join us a become a Certified Fibromyalgia Coach® or Advisor yourself.       Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the Certified Fibromyalgia Advisor® class, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need a good book to read? Download Tami's books for free. Ready to take back control of your life and health? Schedule a consultation with a Certified Fibromyalgia Coach®.
Jul 11, 2023
26 min
Understanding Insurance Coverage w/ Dr. Chelsea Liebowitz
As coaches, we get a lot of questions from people trying to understand their insurance coverage. From prior authorizations to deductibles, coinsurance, and patient assistance, many moving parts need to align to maximize our healthcare benefits. To help gain some clarity around all things insurance, Tami is joined by Doctor of Pharmacy Dr. Chelsea Liebowitz. A pain patient herself, Dr. Chelsea also works for an insurance company making determinations on prior authorizations and helping with self-funded plans. In this conversation, Dr. Chelsea and Tami discuss her pharmacy background, understanding the open enrollment period, defining common insurance terms such as deductible and copay, the relationship between your premium and your deductible, recognizing that the best plan really depends on how you utilize healthcare, differentiating between an HMO and a PPO and why a PPO is often better for someone with chronic illness, why insurance plans vary widely from one employer or individual to another, how to find out if your medications and treatments are covered when choosing your insurance, when a secondary insurance plan can be helpful, understanding drug tiers and how copay cards work, applying to a drug manufacturer for patient assistance, why you might need prior authorization for certain medications, getting insurance on the exchange, the benefits of working with an insurance broker, the prior authorization process, how you can increase your odds of having certain medications and procedures approved by your insurance company, Dr. Chelsea’s advice for reducing your headache woes, options to consider when insurance doesn’t cover your medication, and more. While this discussion focuses on the US healthcare system, many of the ideas and concepts apply to other countries and healthcare options. If you’re confused and overwhelmed by all the insurance options, this episode is for you.     Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the resources mentioned in this episode, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need a good book to read? Download Tami's books for free. Ready to take back control of your life and health? Schedule a complimentary consultation with a Certified Fibromyalgia Coach®.
Jul 4, 2023
53 min
Special #1 - What is a Fibro Coach?
Welcome to episode 01 of a special series where I’ll be answering a lot of questions I get about our Certified Fibromyalgia Advisor® class and about becoming a Certified Fibromyalgia Coach®. In this episode, we’re starting super basic by going over what a Certified Fibromyalgia Coach® is, how that’s different from a Certified Fibromyalgia Advisor®, why you should consider the advisor class if you’re a patient who just wants to feel better, who else the advisor class is perfect for, what the certification aspect really means, the staggering statistics on how many participants see significant improvements in their symptoms by the end of the advisor class.       Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the Certified Fibromyalgia Advisor® class, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need a good book to read? Download Tami's books for free. Ready to take back control of your life and health? Schedule a consultation with a Certified Fibromyalgia Coach®.
Jun 27, 2023
14 min
New Medications for Fibromyalgia w/ Dr. Seth Lederman: Ask the Coach
One of the questions Tami gets most often is, “When are we going to have new fibromyalgia treatment options?” With only three FDA-approved fibromyalgia medications, many of us are on the alert for new options to address our symptoms better. To answer that question, Tami invited Dr. Seth Lederman, CEO and founder of Tonix, to talk about the fibromyalgia medication currently in phase three trials, TNX-102 SL. Dr. Lederman has dedicated his career to fibromyalgia research and has worked on this drug for almost 25 years. Today he’s sharing all the details about how TNX-102 SL could help fibromyalgia patients and walking us through the process of developing a new medication. In this conversation, Tami and Dr. Lederman talk about the process of creating a new medication and the FDA approval process, the significant challenges in the medication creation process, TNX-102 SL - the new fibromyalgia medication Dr. Lederman has been working on for almost 25 years, how TNX-102 SL is different and improved over Flexeril, the importance of improving sleep quality for fibromyalgia patients, the benefits of improved sleep quality, unrefreshing sleep in fibromyalgia patients and how it relates to the pain perception system, the current phase three trial of TNX-102 SL and how you can find out more, next steps after the successful completion the current study, preliminary results showing the positive effects of TNX-102 SL on the quality of life of fibromyalgia patients, the overlap between long COVID and fibromyalgia, the varied factors that can lead to the development of fibromyalgia, a new drug under development for depression that could also have activity in fibromyalgia, positive progress in fibromyalgia research and treatment, Dr. Lederman’s message for you, and more.     Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the resources mentioned in this episode, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need a good book to read? Download Tami's books for free. Ready to take back control of your life and health? Schedule a complimentary consultation with a Certified Fibromyalgia Coach®.
Jun 20, 2023
42 min
Replay: Cutting Edge Fibro Research w/ Dr. Jarred Younger
An objective test for fibromyalgia will change everything. As a researcher, Dr. Jarred Younger’s mission to figure out fibromyalgia has led him to study neuroinflammation as a primary suspect. “What I think is happening in fibro is an overly robust immune response, an abnormal reaction to low level, daily insults to the immune system.” Having seen so much suffering with no effective treatment options, Dr. Younger has become driven to solve the mystery of fibromyalgia by scientifically uncovering the root cause. Key Points Could fibromyalgia be the result of inflammation in the brain? Find out what cutting edge science is discovering. A new tool for scanning and imaging the brain may help us finally pinpoint the pathology of fibromyalgia. The discovery of low-dose naltrexone as a treatment option occurred as Dr. Younger was testing his hypothesis on inflammation in the brain. Correcting inflammation in the brain can begin with simple (albeit difficult!) dietary and lifestyle changes. The hardest thing about running studies is getting willing participants — but that's how we make the scientific advancement. Advocacy is having a tremendous effect on fibromyalgia research. It actually improves the scientist's ability to create new information.  About Dr. Jarred Younger Dr. Jarred Younger is the director of the neuroinflammation Pain and Fatigue Laboratory at the University of Alabama in Birmingham. He is currently funded by the National Institute of Health to study new techniques for diagnosing and treating neuroinflammation, which is inflammation in the brain and nervous system. Dr. Younger completed postdoctoral fellowships at Arizona State University and Stanford University School of Medicine. Dr. Younger's goal is to end the chronic pain and fatigue that is caused by inflammation in the brain.  Links & Resources FibromyalgiaPodcast.com is the digital companion to this audio magazine, where you can find full show notes, links to the studies referenced in this episode, submit your questions for Tami Stackelhouse, and schedule a free consultation with a Fibromyalgia Coach. Get a free copy of Tami’s book, Take Back Your Life: Find Hope and Freedom From Fibromyalgia Symptoms and Pain at FibromyalgiaPodcast.com/books The Teal Pumpkin Project American Fibromyalgia Syndrome Association ClinicalTrials.gov Report.NIH.gov UpToDate.com   Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers. To learn more about the resources mentioned in this episode, visit the show notes. For daily doses of hope, inspiration, and practical advice, join Tami on Facebook or Instagram. Need a good book to read? Download Tami's books for free. Ready to take back control of your life and health? Schedule a complimentary consultation with a Certified Fibromyalgia Coach®.
Jun 6, 2023
1 hr 37 min
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