Dr. Cathy talks with Amanda, mom to Ava, about embracing life when parenting a child with complex needs. Amanda shares vast wisdom and perspective about what it means to embrace life as a parent and about how to help your child thrive. Jenny, Paige, and Dr. Cathy then reflect about Amanda’s attitude and story, the impact of involving family in home visits and therapy, taking breaks, and not vacuuming for your home-based providers.
International Foundation for CDLK5 Research:
https://www.cdkl5.com/about-cdkl5/
Amanda Jaksha would like to share the following resources for parents learning about complex needs.
Family friendly resources about infantile spasms:
Https://infantilespasms.org/families/is-it-is
Resources to learn more about AAC for children with brain-based visual impairment:
Https://praacticalaac.org/tag/cvi/
https://communicationmatrix.org/Community/Posts/Content/15817
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Email: [email protected]
Jenny: [email protected]
Paige: [email protected]
Dr. Cathy: [email protected]