Excision surgery often sits just out of reach in endometriosis care, and Nicole Notar explains why. Insurance barriers, outdated coding, and persistent misconceptions turn a medically necessary procedure into something patients must fight for or fund themselves. Who pays the price when effective care is delayed? Callie Greenberg talks with Nicole about years of being dismissed with labels like anxiety and IBS before real answers finally came. After exhausting in-network options, Nicole paid out of pocket for excision surgery and discovered widespread disease across multiple organs. That moment confirmed what had long been overlooked and exposed how access to care too often depends on persistence and finances rather than medical need. Out of that experience, Nicole founded Endo Excision For All, a nonprofit focused on helping patients access excision surgery now while pushing for policy change around insurance, reimbursement, and disability recognition. The episode also breaks down the hidden financial realities of endometriosis care and offers practical guidance for navigating billing and coverage. Real progress will require systems that treat endometriosis as the complex, full-body disease it is. Episode Breakdown:Connect with Callie Greenberg:Visit the Own My Endo websiteFollow Endo Warriors on InstagramPodcast production and show notes provided by HiveCast.fm