In this episode, we chat with Lauren Shillinger, a fierce advocate for her children and the passage of Brynleigh’s Act for Seizure Safe Schools.  We talk about: <ul> <li>Finding a cause of her daughter’s epilepsy</li> <li>Tuberous Sclerosis Complex (TSC)</li> <li>Traveling to Texas for brain surgery</li> <li>Learning to navigate the system</li> <li>Turning grief and energy toward rare disease advocacy</li> <li>The TS Alliance and her work with the Maryland chapter</li> <li>Brynleigh’s Act for Seizure Safe Schools</li> <li>Ways to introduce legislation</li> <li>Giving back and finding hope</li> <li>The joy found in paying it forward</li> </ul> Related episodes <a href='https://www.buzzsprout.com/729899/3237214'>Families That Advocate Together Stay Together with Laura Hatcher</a> <a href='https://www.buzzsprout.com/729899/2951044'>Changing Spaces and Creating Hope with Christina Abernethy</a> Links <a href= 'https://mgaleg.maryland.gov/mgawebsite/Legislation/Details/HB0370?ys=2021RS'> Maryland General Assembly - HB370</a> <a href= 'https://mgaleg.maryland.gov/mgawebsite/Legislation/Details/SB0225'> Maryland General Assembly - SB225</a>  <a href= 'https://mgaleg.maryland.gov/mgawebsite/Members/District'>Find your Maryland Representatives</a> <a href='https://www.macygilson.com/book'>Kindness is Golden book</a> <a href= 'https://www.understood.org/en/community-events/blogs/making-a-difference/2018/07/25/amanda-gorman-youth-poet-laureate-has-speech-and-auditory-processing-issues'> Amanda Gorman, Youth Poet Laureate, has speech and auditory processing issues</a> <a href='https://dda.health.maryland.gov/Pages/liss.aspx'>Low Intensity Support Services - LISS</a>

Partnering for Independence with Carol Baltazar

A podcast about traveling the special needs road and discovering the hidden gems and unique finds of a place you didn't think you would be. We share how families are doing amazing things as a result of a diagnosis, and give you a glimpse into the realities of raising children with differing needs.