Have you met Ada?

You should meet Ada.

If you've met Ada, either here or in person, just go ahead and listen.

If you haven't, here's a bit about Ada from her Mom.

Ada has Phelan-McDermid Syndrome: very rare genetic disorder caused by deletion/mutation of shank 3 gene.  Only 1700 known cases but believed to be highly under diagnosed. 

There is no cure and life long symptoms include: little to no verbal abilities, hypotonia (low muscle tone), intellectual disabilities, PICA, seizures, autism symptoms, GI issues, sleep difficulties.

(Note from Greg: Google is your friend.) 

Ada is an angel baby magical  fairy mermaid who marches to the beat of her own drum and teaches many wise lessons along the way. She will never be defined by Phelan-McDermid rather she rises above her challenges through her love of authenticity, music, water, cuddles and awesome people.     World of Mae (WOM) was created in her honor...follow Ada’s journey on Facebook or Instagram: @fairystrong.   WOM is committed to always celebrate people of ALL abilities while spreading hope, understanding and awareness through Ada’s fairy beauty;)   Here are a few whimsical, musical interactions between me and Ada.   Also, there are two previous Ada podcasts if you feel so compelled.   Take care of yourself and others.   -G