<p>In this episode, Alyssa and Polly sat down with Carol Roberts from the PBCers Organization. &nbsp;You'll hear Carol share information on her organization and her journey as a rare disease patient diagnosed with Primary Biliary Cholangitis (PBC) which leads to cirrhosis of the liver. &nbsp;Carol will lead us though her experience as an advocacy leader and a patient. &nbsp;We hope you enjoy!</p>

Episode 22 - The White Sutton Syndrome Foundation

This is CoRDS Cast, a rare disease podcast created by the team at Sanford Research. Our rare disease registry, CoRDS, connects patients and researchers everywhere. Here, you'll hear interviews with patients, patient advocates, physicians, and researchers to raise awareness about the 7,000 rare conditions affecting 1 in 10 people worldwide.