*We recognise that not everyone may identify with or like the term 'severe and enduring eating disorder'. In this episode we have chosen not to discuss the label, but rather focus on the impact of the experience.*
Often, people with SE-EDs don't feel like they 'fit' anywhere in the system, and find themselves disconnected, isolated and falling further into illness. At EDV, we understand the desperate need for those in our community who are experiencing a SE-ED (10+ years of illness) to have somewhere to go to feel supported and to improve their quality of life.
On this episode of Candid Conversations, we hear from two members of the EDV team who have recovered from severe and enduring eating disorders - Emilie and Richard. Emilie and Richard are members of EDV's SE-ED program, a new (world-first we believe!!) program for those with SE-EDs. In our conversation we discuss:
- What defines a SE-ED and how common is it
- What are the impacts of SE-EDs (Richard shares their lived experience)
- Why do some people develop a SE-ED
- How the EDV SE-ED program developed and how it's structured
- Why quality of life rather than recovery is the focus of the program
- The role of hope
- Tips for carers/support people
- How to get support if you live in Victoria
Huge thanks to Emilie and Richard for generously sharing their time and lived experience in this episode. For more information about the SE-ED program, please visit: https://www.eatingdisorders.org.au/find-support/edv-se-ed-program/
📞 CONTACT THE HUB:
Call: 1300 550 236
Web Enquiry: https://www.eatingdisorders.org.au/
If you are located outside of Victoria, please contact The Butterfly Foundation: www.butterfly.org.au
🌿 FIND EDV ON SOCIALS:
Instagram: @eatingdisordersvictoria
Twitter: @ed_victoria
TikTok: @ed_vict
EDV acknowledges the traditional custodians of the land on which this podcast is recorded. The Boonwurrung and Woiwurrung people of the Kulin nation. We pay our respects to elders past, present, and emerging.

