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Bookaholic | Author Interviews | Book Reviews | Book News
Deirdre Pippins
When Doctors Say “Never”: What Every Parent Needs to Hear | Episode 148
40 minutes Posted Mar 20, 2026 at 11:05 am.
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At birth, doctors gave Suzy Fischer a devastating prognosis: she would never walk, never talk, never live independently, and never form meaningful relationships.
Born with severe brain abnormalities and the rare condition Joubert Syndrome, Suzy’s life was expected to be defined by limitations.
But her mother, Jane Fischer, refused to accept a future built on “nevers.”
In this deeply moving episode, we explore Suzy’s extraordinary journey—one marked by unimaginable challenges, relentless perseverance, and a mother’s unwavering belief in what could be instead of what doctors said would never be.
Today, Suzy is the oldest living person with Joubert Syndrome, and her story continues to challenge medical assumptions and inspire families around the world.
Her journey is captured in the powerful memoir: If You Knew Suzy: Pushing Past the Boundaries of Never.
This episode is a testament to love, resilience, advocacy, and the extraordinary strength found in both caregivers and children.