It’s estimated that there are as many as 7,000 different known rare diseases in the world. In the The U.S., it’s defined as "any disease or condition that affects fewer than 200,000 people. Today, you’ll meet two of them, and their mothers. GUESTS: <ul> <li>Erin Rupolo is the Mid-Atlantic Regional ChairPerson for the Williams Syndrome Association and she's a Special Education Paraeducator in Kensington, MD</li> <li>Sophie Rupolo is 12 years old and has Williams Syndrome</li> <li>Allyson Buck of Greenwich, Connecticut is Sam's mom and the co-founder of the <a href="http://vwmff.org">VWM Families Foundation</a></li> <li>Sam Buck is 10 years old and has Vanishing White Matter Disease</li> </ul> Photo credit: Sigurd Decroos - freeimages.com<a href="https://www.wnpr.org/donate" rel="payment">Support the show: https://www.wnpr.org/donate</a>See <a href="https://omnystudio.com/listener">omnystudio.com/listener</a> for privacy information.

Revisiting US In The Time Of Coronavirus

Audacious with Chion Wolf spotlights the stories of people whose experiences, professions, or conditions defy convention or are often misunderstood. Guided by deep curiosity and genuine compassion, the team behind Audacious creates space for the kinds of stories that rarely get told - and the kinds of questions we're often afraid to ask. From those speaking publicly for the very first time to voices already known around the world, every guest is met with care, and every story is honored as both deeply personal and profoundly human.
For more: ctpublic.org/audacious