SRNA Soundwaves
SRNA Soundwaves
Siegel Rare Neuroimmune Association (SRNA)
1108. Disability and Rare Neuroimmune Disorders Part 1
1 hour 1 minutes Posted Jun 5, 2023 at 2:00 pm.
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Show notes

Dr. GG deFiebre of SRNA was joined by Dr. Cyrena Gawuga for an “Ask the Expert” podcast on "Disability and Rare Neuroimmune Disorders." Dr. Gawuga began by describing how medical conditions like rare neuroimmune disorders are related to disability. She gave an overview of language and models for disability, and how these impact our views of disability. She shared how her experience with this identity has changed over time. Finally, Dr. Gawuga offered suggestions for connecting with others in the community, as well as navigating sensitive conversations with family or friends.