This week we welcome Author and Rare Mom Dana Garrett! She wrote the sweetest book called ‘Alana and Wyatt’s Adventures - The Rare Gator Rescue’. It’s an incredible story full of inclusion and recognition and you will want to hit BUY NOW as soon as you hear all about it. Don’t miss this one, we [&#8230;]

A Rare Reality – Season 5, Episode 9: JGA Family Stories, A Conversation with Leslie Batuyong

We are living ‘A Rare Reality’ and we want to tell you all about it! Join Jordan’s Guardian Angels as we cover dozens of topics in the rare disease space and give you a closer look at our groundbreaking research into Jordan’s Syndrome that could one day change the world. We want to uplift, advocate, motivate and inform.