Young Tongues
Young Tongues
Barbara Fountain
"Just Be Grateful You're Alive"
1 hour 10 minutes Posted Aug 6, 2026 at 11:02 pm.
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1:10:22
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Show notes

In this candid catch-up episode, Barbara, Stef and Jamie begin with plenty of laughter—sharing stories about theatre, summer adventures, travel plans, social media algorithms and the realities of trying to stay cool during record-breaking heatwaves. But as always, the conversation soon turns to life after tongue cancer.


Jamie opens up about the heartbreaking struggle of trying to access restorative dental treatment following radiation therapy, exposing the frustrating realities of the US healthcare and insurance system. Together, the trio discuss the long-term impact cancer treatment can have on oral health, why restorative care is about far more than appearance, and the emotional toll of having to continually fight for care.


Barbara reflects on speaking to healthcare communication professionals about what meaningful patient involvement should look like, sharing why patient organisations deserve to be treated as valued partners rather than an afterthought. The conversation explores research quality, safeguarding, tokenism and the importance of involving patients from the very beginning of research projects.


Stef marks the anniversary of her diagnosis by reflecting on finally being believed after months of being dismissed because she was "too young" for tongue cancer.


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